I was diagnosed 14 years ago ( Psa 54), I was 41 its been quite a journey from not knowing I even had a prostate to the information that is stored away today.
I had high dose brachy threapy 2 doses in 1 day a first apparently, your young we'll see how you do. followed by 4 weeks of RT. and of course good old Hormone injections.
My Psa went down and then slowly started to rise, CT and Bone scans were clear we can't find it. So I was packed off for a PET scan with Choline, and there it s is Lymph nodes and bottom of my spine.this was diagnosed at Marsden who sorted out big operation to remove the nodes and I was off work for a month at least, and psa went down again
A few years later it starts to rise and I was put on a drug that I can't remember the name but it didn't do anything, I was offered an early trial on Abiratone so I have been on that I think for about five + years .
This year my PSa started to rise so back in the scanner CT and bone, and me telling my very nice oncologist they don't pick it up, eventually shoved me through a PET scanner, more lymph nodes, so after a conversation that my local hospital could only offer me Chemo, I said can I go back to The Marsden they must have some thing better.
As I had already had RT there was a concern about giving me more but the Marsden have a very accurate machine that gave me 5 doses of RT over a couple of weeks with literally no side affects.
so that brings us up to date as of yesterday my PSA is 0.04, my oncology team have been absolutely awesome over the years both at Plymouth and the Marsden and i can never thank them enough.
So the downside of all this treatment. I'm pretty tired all the time (running bloods yesterday for Iron and B12).I seem to have a fuzzy head could also be vitamin deficiency.
I'm waiting for a 3rd hernia repair after the lymph node operation, I seem to have lost a testicle now again 14 years of hormone treatment have not been kind on the downstairs department lol. I have but on a bit of weight and have a fine pair of breasts.
On the plus side I'm still going, my PSA is low and Abiratone makes your hair grow like crazy.
So thats my story don't give up the drugs and treatments are evolving all the time,
