Pretty fed up right now

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Hi .. as you can probably tell from my being here I've recently been diagnosed with prostate cancer

Appointment with urology consultant tomorrow .. so hopefully will have more info to help with treatment decision (monitoring not an option due to stage of cancer apparently)

Looks like I have to choose the 'least bad' option as there doesn't seem to be a 'best' way forward and RP has similar outcomes to hormone and radio therapies 

Sending love and light to all those affected 

Mx

  • Hi Martin - Welcome to the club no one wants to be in! I have been here a couple of weeks, reading people's answers before that and there are people on here who have been there, done that and can answer most questions.

    Stick your scores on your profile - it will help people understand your situation better - my profile is available if you click the icon next to your user name. 

    I hope all goes well for you tomorrow and you get the most positive outcome.

    Don't suffer alone - I try and think positive all the time - it's a start being here.

    Kind Regards - Brian.

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  • Agree that having PCa treatment going forward just seems pointless sometimes. I've never had the opportunity of surgery due to my PCa being stage i'd get rid of it if I could! However saying that if I got the option I'd probably bottle it and go for less invasive approach who knows. Hormone therapy has been a good ipto n as has Radotherpy both have worked well. Sorry can't be much help as pc is at different stages by the looks of it but I hope your appointment goes well and your informed enough to take the least bad option going forward.

  • Martin hi, not a recommendation, just my experience. I chose the RP option as cancer was aggressive and tumour was on the edge of emerging from the prostate, post op histology revealed it had affected one nearby lymph node, luckily removed as a precaution. With RP against RT here's lots to consider, but I didn't have the choice. Being young to have it at 58 with hopefully long post op life expectancy,  I was told the RT might cause damage or even initiate other  cancers close to the prostate site within my lifespan. If you are fortunate to be able to nerve-sparing of the erectile nerves,  as part of the RP, future erectile function is very possible and lots of advice on here for that. .However the docs might not tell you, (obvious if you think about it, in my case and probably universally,) as the prostate surrounds the urethra, removing the whole prostate involves cutting out a section of the urethra within the prostate and reconnecting the urethra back  to the bladder....that means your urethra, and therefore your penis, will be slightly shorter, excited (I wish...!) or at rest. On removal of the catheter after a week post op, I really did think 'who's stolen my penis...?'! My surgeon did obliquely mention it pre-op, and he also told me that this shortening is repaired with time but I am sure his Pinocchio's nose was growing at that point....I just, he was brilliant as was the NHS from GP to discharge after op . I had a post operation issue with my wee flow slowing to a trickle, which had to be opened out again- that meant GA, overnight stay, and a catheter for a week. I am under monitoring as my PSA is rising, but that's just me.

    Martin those are my experiences, not my advice and I can't comment on RT as I didn't choose it. However, having the RP does give you the second hit of having RT in the toolbox to bring out should you need it, as I indeed might. 

    Hope this helps, any further questions let me know. 

  • Hello Martin.

    My Cancer was aggressive, I opted for RP without HT, one reason was speed. IYou might be on Hormone for three months prior to surgery.

    The surgery was not a complete success, so managed to get RT in about five months, also without HT.

    I live on my own, I was seventy years old at surgery, Re not taking HT with surgery and RT, felt in my position it might wear me down., also you get a true PSA reading in a shorter time without HT'

    We all have the same complaint, but with different priorities.

    All the Best.