Hi Guys, and Hello

Optimist (great username),

It was only May last year when I was diagnosed, (Gleason 3+4(7) Intermediate Risk.  Things seemed to go well, put on hormones straight away and 4 months after the diagnosis I was having my month of VMAT Radiation treatment.

Now it's looking like everyone newly diagnosed, they are really taking their time to do anything.

If you do get seen at the end of September, it's now only 3-4 weeks away.  If you look at it like that, it's not too far away.

I know that the worst thing is waiting.  I would keep on at them until you get what you want.

It seems to be the "new normal", (god I hate that phrase, don't know why I used it).

Not be long now, best of luck.

Hi optimist:

this does seem to be the normal these days. Sounds similar to the time I have been waiting too. End of March confirmed cancer. After all the other things in between finally prostectomy on 7th Sep. Just looking forward to feeling better. I was told that I was high risk with a psa of 50 yes fifty. Gleason 4+3. Have not been told as yet what my TNM score is I think they do not want to tell me. I do agree with you it is the time waiting that gets to you more. From the initial CT scan which says it is contained in the prostate. This was 2 months ago. I think cancer has spread in that time the way I am feeling. 

Does not sound as if you have long to wait. Good luck and hope we both come out the other end of this. 
Arnold. 

Thanks, Stevecam. Best of luck to you, too.

Thanks Arnie, 

I'm a 3+4 and agree it's the waiting and fear that, whereas cancer had not spread, 3 months later it may have. BUT, remain positive and hope for the best. Good luck.

Hi

I couldn't have surgery, so this might be a stupid question. Have they put you on any hormone therapy? I ask as, if they have, it will stop the cancers growth.

As I say might be a daft question but......

Regards

Stuart

Stuart,

I know in my case, I think it was the blood thinners that excluded me from the surgical option.

2 choices were "Hormones and Radiotherapy" or "Do nothing".

Wasn't really a choice was it?

Hi Steve

No it wasn't,  but the positive I took from it was that I didn't really have to make a choice. Obviously, 'do nothing' was discounted, which left HT/RT. Easy choice.

I think it would have been more stressful, having to choose between HT/RT and surgery. At the time, I just wanted it out of me but that wasn't to be.

Regards

Stuart

I'm glad I never had that option.

Hi guy's, just as all men are different so are cancer's, some are agressive and fast growing some are less agressive and slow growing.

I have the first type, incurable advanced matast prostate cancer straight onto HT/RT.

A friend had slow growing 18 month's from diagnosis to removal, like most guy's he just sat back and waited not knowing the full facts, till he spoke to me.

It's your body if you don't ask the questions they presume you know, wrong!, Write down what you want to know, get on to oncologist and get the answers, also make sure you received a copy of all letters sent to your GP, you'd be surprised at the information contained, so don't be shy get stuck in.

All the best Ulls 

Hi Scampidoodle,

it’s definitely not a daft question. The answer is no, I have not been offered hormone therapy. That was an option if I went the RT route, but I chose surgery thinking it would be just as quick, if not quicker, as that was what the surgeon indicated. That was in July. Not sure I want to change horses now, but delay is stressful and worrying. Apart from the PC diagnosis I am fit for my age (67).