REZ

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Hi everyone

It all started in may 2022 with PSA 3.14, referred to MRI than biopsy , results Gleason 3+4 & 4+3 . Psma pet showed not spread.

Today I received 3 phone calls each one with different treatment. First: radio therapy+hormone therapy including active surveillance. 2nd: prostatectomy and 3rd: cryotherapy.

They are all waiting for me to decide . I am confused and can't decide. Any help and suggestions please.

July 22

  • Hi July22,

    Welcome to the club that nobody wanted to join but glad that they did.

    Most of us have added our journey in our profile, you can look at these by clicking on the icon next to our names. You may want to add your details to your profile.

     I went down the HT/RT route. My original PSA was 79.39 & Gleason 4+3=7. I’ve just had my first PSA test since finishing RT which is now 0.01

    Sometimes your situation determines your treatment, mine was because mine had broken out of the prostate so having it removed was not an option. I do get hot flushes due to H/T most are bearable apart from the week after I’ve had an injection of Prostap 3. I know that it’s going to happen so I never plan anything for that week.  

    I’m sure others will reply.

    Tyler

  • Hi July22

    I was in the same position as Tyler. The cancer had broken out of the prostate, so removal was out of the question.

    In some regards, I see this as fortunate, as there was only one option, RT/HT,  offered.

    That said, aside from the fatigue and hot flushes, which I still get 9 months after my last Prostap jab, the whole process was OK.

    Hope this helps.

    Stuart

    Trying to get fit again!
  • Totally agree with Tyler and Scampidoodle, check some previous posts out and check profiles, we fill them out not just for ourselves but to aid and assist others.

    PC isn't that simple a Cancer, we are all different so even the same treatment can affect us all differently.

    First thing I do when I get up is check out any new posts, and if I can offer anything I do, all based on my own experiences and knowledge I have picked up along the way.

    Do you know who your Oncologist is?  Are these phone calls coming from the same department?

    Give the hospital a ring to try and get to the bottom of it.

    Please let us know how it goes.

    Steve (SteveCam)

  • Hi J

    With your Psa being so low, along with Gleeson being lowish, u could certainly go on AS for a while, do u have a previous figures for Psa?

    As far as treatment goes look at potential side effects  and which u fancy the least.

    Surgery, potential issues with ED and urinary problems although not everyone gets them and sometimes they can better over time.

    RT and HT  longer treatment time with HT side effects potentially  lasting for some time  Not so likely to suffer ED issues which can be important to some obviously.

    Other point to consider RT is still an option after surgery if cancer comes back but very difficult the other way round

    Good luck

    Steve

  • Thanks Steve and others for your support.

    Previous PSA was done sept. 2022 @ 2.41 next 1 was April 2022 @ 3.14 than sent for MRI. The 3+4 on the left was was recommended AS. And 4+3 on the right was recommended for the 3 options I mentioned, I forgot to add another option with cryotherapy, a nanoknife therapy. So many options to choose from.

    Thanks

    July22

  • Hi Rez22 with so many options on the table, difficult to decide.

    Have you had a MDT meeting, if not give the oncologist a ring and arrange a meeting to find out all the pros and cons of each treatment path, you can't be expected to make a decision without full disclosure, it's your life not theirs, don't be rushed into a decision without all relevant fact, and take someone with you, two heads better than one.

    All the best Ulls 

  • Yes , a lot of options there, read mixed outcomes with Cryotherapy, possibly better with Nano although a while ago I read the details.

    Remember with these two there are no long term stats to show success rates.

    RT and surgery, tried and tested with good similar success rates

    If it was me I would probably look further into Nano to see if it really was a good alternative

    I presume that these options are at a NHS

    Steve

  • Thanks everyone.
    Yes It's on NHS. You are right I read about the nanoknife, it seems a good option , I should be lucky to have been offered all these 3 options.
    As of the MDT it's only between the doctors, they won't have a 1,2,1 meeting until I choose 1 of them.
    Sorry everyone, I changed my username from July22 to rez22. Sorry for the confusion.
  • Hi everyone

    It has been a while since I last commented but last week I had some appointment dates fixed for analysis and surgery in December. As I said I choose cryotherapy. The reason I am letting everyone know is because today I received a result of my PSA test and it's 1.86 down from 3.14 back in April and this due to change of diet I believe. I went almost 98% plant based diet + some particular foods + regular exercise. I don't know what 1.86 really means and still don't know the outcome of the cancer but I will let you know at the end of November when I see the urologist.

    Thanks

    Rez22

  • Hi Rez 

    Good news about the PSA and a bit unusual, it normally continues upwards with PC.

    A good contender for AS I would say.

    Interested in the plant based diet that you've started, do u eat eggs, fish and milk out of interest

    • Keep us updated

     steve