Prostate biopsies/Radiation/Surgery

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Hello all. I hope I'm posting this in the right place. I may post it in another section as well while I learn more about this support group. 

I am a 68-year-old Caucasian male. 

My PSA level had never seemed too much of a concern to my urologist. The highest it had ever been 5.39 two years ago. It dropped more than a point last year, but at the end of last year I had some odd sensations in my groin area after going on a bumpy bike ride. This prompted a new urologist to order an MRI in January 2022. She said she found something "suspicious."

Part of my world ended that day as I could not accept that I might have prostate cancer. I had seen my mother die of ovarian cancer, braving it out for 2 years after discovering it was Stage 4. 

It took me several months to confront my reality, which I know was stupid. Finally my regular urologist looked at the MRI results and said yes, there was something suspicious and he was 80% sure it was cancer. He advised me to have a biopsy, which I did on June 2. 

The results were 5 out of 22 cores indicated cancer. My Gleason Score seems to be Grade 2 3+4. The current urologist was not terribly concerned and indicated that I should consider radiation (Brachytherapy) or surgery (Radical Prostatectomy). 

I have heavily researched both radiation and surgery. Radiation sounds less horrid than surgery, but I am deeply concerned that radiation can affect other organs, whereas the idea of surgery (robotic) is that the prostate can be removed entirely. But still the complications sound deadly. 

I would like to ask questions about both radiation and surgery. Is this the right place to do so, or should I be seeking other groups? Thank you in advance. 


  • Tatami,

    Welcome to the Prostate forum.  We all have the same thing in common.  You will find lots of interesting people with amazing knowledge, all first hand.

    Whatever your situation, there will probably be someone else who can relate and let you know their experiences. I

     remember last year when I was diagnosed, it was as if I wasn't in the same room.  I wouldn't wish it on anyone.

    My partner got me to start a 'Thought Diary'.  What would I write???  Now some 14 months later I am half way through my 6th diary.

    I go back every day to the corresponding day last year to see how I was coping.

    Sometimes I laugh, sometimes I cry, there were a lot of bad days.

    This forum helped me immensely.  I hope it can do the same for you.

    I was unsuitable for surgery so I opted for the Hormones and Radiotherapy options.  Don't regret that decision at all.  Yes I had (and continue to have) side effects but if it means I can be Cancer-free, then so be it.

    It was harder being told that I was in Remission, last February.

    Best of luck with your choices.

    Steve (SteveCam)

  • Stevecam, thank you for your thoughtful response; I really appreciate it. 

    Yes, the side effects are what I am deeply concerned about. If you feel like sharing with me what you are dealing with 14 months later, I'd appreciate knowing what they are. And I'm very happy knowing you are in remission. Be well. 

  • Tatami,

    The side effects now are all from the Hormone treatment.  Lots of Hot Flushes (mainly in bed at night), Erectile Dysfunction is something else I have to live with at the moment.  Once my Testosterone machine starts working again hopefully it will begin life again.  My libido is zero, so I never think about it, which is good in a way.

    If it comes back, Woo-Hoo!!!, If not, it's not the end of the world.  If it means that I can be Cancer-free, it's a no-brainer.

    My waistline had expanded from the Hormones, didn't put weight on, just my waistline expanded.

    All of this Covid hasn't helped.  I still haven't been out anywhere since the first lockdown, only for shopping and to work.

    After my month of VMAT Radiation sessions I started counselling sessions through a charity called 'Coping with Cancer' based in Newcastle.  They were great.  This went on once a week until mid-April.  Now I am much stronger mentally than ever.

    If I could take one positive thing from the Cancer it's that.  I know it sounds strange, but if I never had the Cancer I wouldn't be the man I am today.

    I now have a different outlook on life.  The Macmillan Prostate Cancer forum is great, I can't thank everyone enough.

    Keeping a sense of humour is paramount, otherwise you'd cry all the time.

    Having my partner there at every step, without her, I don't know what I would have done.

    Asking for help was my stumbling block, I would never admit that there was anything wrong.  Now I can, not 100% but a hell of a lot more than this time last year.

    One last thing, I can waffle on and on and on and on.....

    Steve (SteveCam)

  • Steve, if I may call you that, please waffle on and on. I value each and every word. 

    Have done more research today and radiation therapy at least seems like a possibility for me, and I want to fully understand it.

    I can handle ED if the thought is it won't last forever. I can handle expanded waistline from hormones (if I have to take them). 

    The thing that concerns me the most is urination. Has it been painful for you? If so, how long did that last? After my biopsy the two weeks that followed were hell. And then everything was fine. But the radiation is obviously a much bigger deal. 

    And it doesn't sound strange at all. Getting the prostate diagnosis made me rethink what is important in my life and WHO is important. 

    Please, continue to waffle. I'm happy to read all. (BTW, please call me Dee, my nickname. Can't use real name on this site for now.)

    -Dee 

  • Dee,

    The main problem I had from the Radiation treatment was my Prostate was squeezing my bladder and my stream was down to a trickle.  It did improve with time but dying for a Pee and then just a trickle comes out, doesn't do you much good.

    I had a little trouble with incontinence but I got some "pads" through the district nurse.  The size of them, they would have fitted a horse.  They did their job though.

    Put a couple in n bed every night (just in case).

    It took about 4 months before I was confident enough to stand up and pee.

    The first time was like being a child again.

    Steve (SteveCam)

  • Thank you. This helps immensely. Yes. I've been thinking about the pads. If you're now confident to stand up and pee, that is a major thing. I can't thank you enough. It's brave to share this. 

    -Dee

  • Did you feel confident leaving the house? After my biopsy I couldn't leave for 5 days, and then after that, I had to make sure I knew where every public toilet was on my route to get to my job, and I used every single one of them to avoid accidents. I wore a padded underwear in case. But I was fortunate. Again, that was the biopsy. So, the radiation is another matter entirely. 

  • Hi Tatami53,

    I have attached a link from the hospital where I recently had my radiotherapy treatment.

     I hope that you find it useful,

    https://youtu.be/XsV9YbPmhNk

    Tyler

  • Tyler, I deeply appreciate this. Thank you!

    -Dee

  • Hi Dee,

    You’re welcome.

    Here is a link to after the treatment has been completed.

    https://youtu.be/gw3VglxoIiU

    Tyler