Hello, my husband was recently diagnosed with advanced prostate cancer. I'm here to find out more, learn how best to support him and maybe meet others who are in a similar situation. Lulu
We can help in many ways, information is a priority, in what way do you want to support him ? Is he able to walk, how long has he had PC and when was it diagnosed, anything you can tell us gives us a bit of a picture.
Sorry to ask all this, you must be worried and frightened, don’t be stay positive there’s great treatments out there that can help, if you look at a few profiles this will tell you, have a look at mine or scampidoodle they tell stories and may help.
We already know that it's advanced (Gleason is 4+5, T3b/4, N1, M1). He is waiting to see an oncologist and has been told he will likely be started on abiraterone. He also has nephrostomies at the moment as he has ureteric obstruction secondary to the cancer. I just suppose I want to know best how to mentally and emotionally support him going forwards and perhaps what to expect.
Thank you Joe. It's more looking how to support him mentally and emotionally going forward. His Gleason is 4+5 and he's T3b/4, N1, M1. He is waiting to get an appointment to see his oncologist but so much still seems very unknown/uncertain in terms of how effective his treatment is likely to be in slowing it down.
If like my wife you do your best to help him not dwell on what he has, staying positive is a big thing to us, helps in more ways than I can say. Treatments differ for most people, one thing though, they are effective, I presume he’s on hormone therapy, has he had any scans yet ? There will be a few pet scan, mri, x rays etc. I have had a few a year since I was diagnosed.
Arbiraterone is a great medication I’m on enzalutamide it’s equivalent, when you see your oncologist, make sure you have questions to ask, like side effects, scans, what’s the plan B if the arberaterone stops working ( which will take some time ) plus anything else you can think of write them down ready.
As my wife will admit, she worries about me on a daily basis, as I’ve had this disease for over five and a half years now, plenty of downs but the ups you take them with both hands.
Thank you Joe. Yes I think we'll write a list of questions ready to take with us. Yes he's already on the 3 monthly hormone injection. He's had a ct scan and bone scan recently but I think we'll know more once we've seen the oncologist
May I ask how old your partner is ? I ask this as I wonder why chemotherapy was not offered first, unless it was to do with the urinary infection, then there’s radiotherapy again maybe when his infection has cleared. Just things to ask.
Hi Lulu, sorry to hear of your husbands diagnosis. Here to help any way I can like everyone. Joe's advice and knowledge is very useful, my wife and I used the councilling sessions given to us by macmillian, they were brilliant even my mum and uncle used them. Take care
Regards
Paul
"Diagnosed March 2021 at 38 years old with stage 4 metastatic prostate cancer, my journey so far is on my profile"
Hi, I'm not too sure re chemotherapy. He is 72 and we're in Scotland so I know treatment options can sometimes vary between countries of the UK. I think they're hopeful the abiraterone will give positive results while still being well tolerated.
