Struggling

So sorry to hear this. It is veryhard and certainly ‘ fearful but not seeking help’ is very familiar to me from my husband’s experience. We benefited from 6 sessions of free counselling from Macmillan which didn’t make the fear go away but at least made it easier to talk. I’m sure the Macmillan support line can tell you more. Also i found the people at Maggie’s very good to talk to when I was feeling desperate and couldn’t talk to my husband - just a half hour phone chat every so often makes a lot of difference. Good luck, and virtual hugs

Hello Happy 

thank you for the guidance and support. I hope your husband, you and your family are doing well. 

Kind Regards

Hello

You could ask for McMillan nurses to pay you a visit, there Excellent dealing with these situations, As regards proteus, this is a new trial only been going barely two years,  so not much information about it. 
With all medications side effects are common, after time and being positive you learn to live with them, hopefully being so young he’s got many years on his side.

How are you coping with all this ? It affects everyone.

Stay safe

Joe

I think this is similar to the Apalutamide study. I was offered it but did not have the gene mutation. It is combined with a placebo so you don't know if you're getting it but I'm told the results have been very positive. 

Hello Jo

Many Thanks

Many Thanks 

I to have a 9 not the end of the world believe me nasty as this one is mine started in 2010 was very aggressive so had a radical prostatectomy it came and went over the next 10 years now it has come back they always give you 4/5yrs on any treatment and there are right but I'm still hear 12yrs later not bad when they gave me 5yrs. I'm 68 yrs now so was about the same age as your husband then. mine has come back so got to fight again. 

so what would I say to your husband hmm? Just had a knee replacement in Sept 2021 I been up St Pauls on 22/12/21 to the top and plan on going back to Ben Nives as failed the first time, this time at 70yrs old I'm going to the top. also forgot to retire so still working full time 50hrs wk.

so take the bull by the horns and take the world on, on your terms 

yours Ghaham 

ps.  the tiredness could be 2 things 1 diabetes and the hormones my friend is going through early stages and suffering as well I found that green tee or decaf tea helps and strangely monster super energy drink probably get shot for that 1 so I won't tell anyone that I have drunk 7000 cans over 12 years  Its what works for him 

to finish I was the same as your hubby mt grandchildren are now older and have seen me fight this 1 has Spina Bifida and the other one has a bowl cancer seeing me fight this has given them the fighting spirit. 

remember you can't be on top every day so hears my rule

1,  you are allowed to have 15 days in every 100 to have the hump  graham said so ( 1 in 7)

2. the other 85 days have a good 1

how do you have a good day when you get up in the morning look out the window and see the world because you made it through the night that's a good day because it doesn't matter what the weather does your warm and dry and alive.

yours Graham