hello

FormerMember
FormerMember
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Hi my husband had a prostatectomy 10 weeks ago. It was Gleason 7 and is not in his lymph nodes.  I believe that subject to PSA test there should be no follow up. But it's been a tough and trying time.  

  • FormerMember
    FormerMember

    Hi, sounds like we're in the same boat. My husband, (Gleason7 and yet to understand whether in lymph nodes) admitted for robotic radical prostatectomy on 20 December, discharged on 23rd December, readmitted via A&E and 7 hours of being passed from pillar to post and then discharged again on 30 December.  Everything we researched and spoke to men who had the same surgery was different for us, and a surprise.  We are early doors in recovery and finding and adjusting a way to go day to day with an eye on that light in the distance. My husband is very tolerant of pain and is very much a let's get on with it type of man.  And now he is just in discomfort. But he has been overtaken by the feelings he is going through - the looking and being vulnerable (with catheter and drain) - and in his words not like a man. I cry for him when I'm out of the room because I want to be strong and I know we will come through the other side but your words - tough and trying - mirror exactly what we feel. We started off when we knew he was to have surgery with a positive mindset and reality for us has been more challenging than we expected. But we are hanging on in and know we are luckier than many.  Thank you for posting Nerd.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi VanB, I hope you get to hear good news soon. My husband had his robotic op on 23 October. No amount of research etc prepares you for the impact.  I felt that my husband left the house complete and returned bruised and broken and it's been a long slow road to repair.  I know that he ultimate outcome is to be hopefully cancer free and for that we will be grateful. There is a sense of 'survivor guilt' when I read of men who receive a terminal diagnosis. We've had two 'date nights' in A&E.  I looked at this time as a hibernation and hope that in Spring things will be much better..... husband is seeing a physio for help with incontinence and will see an ED specialist soon.  But every case is different.  I would say to anyone wondering about life after prostatectomy, prepare for the worst and hope for the best.  Wishing you all good things in the coming months. 

  • Hi Nerd.

    I had my surgery three months ago, and the pathology confirmed my cancer was confined to the prostate with no spread. I, too, am now due periodic PSA screening with no further treatment planned.

    It is indeed a trying time, but whilst I am aware of the possibility of a recurrence, I am now trying to get on with life. If it happens, it happens and I’ll deal with it.

    You and your husband have a second chance. Embrace it, look forward rather than back.

    Best of luck.

    HH

  • Hi Nerd

    Never feel guilty about us incurables, we live life just the same as any one else, ok bit slower not as strong, but there’s many of us just chugging along. A and E is not to bad, I’ve been in there a number of times, all part of getting old.

    Sounds like he’s gone though all the rough treatments and with a little more time should be bouncing round like Tigger, Hopefully you two should be back to normal and can leave this episode behind you, it was caught in time and dealt with, that’s great for him now just enjoy the rest of your lives together, nice walks a holiday ( when covid lets us ) and everything else.

    Stay safe

    Joe

  • FormerMember
    FormerMember in reply to HappyHacker

    Thank you HH for taking the time to reply, I hold onto the thought there'll good times ahead and know we've been v fortunate.  

    Very best wishes

    Nerd

  • FormerMember
    FormerMember in reply to joeven

    Thank you Joe for your kind reply. We're going to focus on the good stuff ahead and start those steps back towards doing normal things together. 

    very best wishes 

    Nerd