Newly diagnosed .....

  • 13 replies
  • 182 subscribers
  • 2531 views

Hi I've recently been diagnosed T3aN1M1. I'm 63 and my psa is high at 105.

I have been on bicalutamide for 4 weeks and the consultant wants to put me on the Decapeptyl injection from next week telling me it's  better at keeping the cancer under control by hitting it harder. I'm worried about the side effects and would probably be happy to just keep on with bicalutamide monotherapy.

I am healthy and active in other respects doing lots of exercise and trying to stay ok..

The metastasis is in my ribs, possibly some to the spine and right hip but they may need to do more scans to clarify. I'm guessing I might have a couple of years left but I guess it's hard to say.

Any information regarding whether I should go with the Decapeptyl would be good. All happened fast and still finding it hard to take in.

Thanks

  • Hi, 

    Can't comment from experience as we are waiting results from my dad's bone scan and scheduled biopsy now moved to 31st Dec, but from all the knowledge on this wonderful forum I've learnt that metastatic prostate cancer doesn't necessarily mean you only have a couple of years left. Lots of men live for many years with the right treatment these days.

    Sorry can't advise on the treatment but just wanted to comment as I picked up on the "two years left". Everyone is different :) 

  • Thanks so much for replying with some positivity.  I will do my best to adjust to my new situation.

  • I have a good friend diagnosed in 2010 and told he only had 2 years. He's still with us and is OK and still staying positive so I would say 2 years is well under estimate.

    Good luck with any treatment with best regards Reg

  • Hi

    My stats are different and  cannot comment on the medication you have been offered but I took anything that was offered.

    Hope this helps.

    Regards

    Stuart

    Trying to get fit again!
  • Hi
    Sorry about your diagnosis, I was 64, have it in the same places ribs etc, my scores were a lot higher, here I am five and a half years later still fighting away.
    I was very fit, but I put life above everything else, for wife and family. I don’t know much about Decapeptyl I started on the same as your on, then went on to Prostap3, I had chemotherapy and hormone therapy, now I’m on enzalutamide, Yep I had plenty of side effects, but came through all of them. It does not matter what medication your on there’s always side effects, fighting and being positive are very important, keeping it over the amount of time like I’ve done is hard but worth it.
    So two years you can multiple that.
    Stay safe
    Joe

  • Thanks Joe that sounds really good and very positive. I am expecting it to be tough and at the moment just going a day at a time.

    If you get a chance to reply ... how long were you on Bicalutamide before you went on Prostap3 ?

  • Hi Axia, go with the Decapeptyl if that is what your consultant recommends. I am on the 22.5mg injections every 6 months and my side effects have reduced/body has adjusted to the treatment. I was on the Biculatamide aswell and now on enzulatimide aswell as a whole lot more treatments in-between. I wish you well 

    Regards

    Paul

    "Diagnosed March 2021 at 38 years old with stage 4 metastatic prostate cancer, my journey so far is on my profile"

  • Every treatment for prostate cancer comes with side effects, some worse than others. 

    It's a trade off: in return, you will almost certainly get a much longer life, and you are much more likely to keep the effects of your cancer at bay for longer.

    There may come a time when the price is too much to pay; quality of life is important. But I doubt you've reached that point yet, and chances are you can extend your life by years.

    The choice is yours, but it's a decision with no second chance, so be sure it's the right choice for you.

    - - -

    Heinous

    If I can't beat this, I'm going for the draw.

    Meanwhile, my priority is to live while I have the option.