The waiting?

There IS always hope, but the business of finding out which hope is the right one for you does take time.

For me, from GP referral to treatment plan took about three months: it varies a lot, and little things can delay it - like a CT scanner down for maintenance.

Once the tests are complete, all the information will go to the multidisciplinary team to discuss those options. then there will likely be two appointments, one with the surgeon, one with the oncologist, to give your husband the details and - usually - allow him to choose the way forward. You don't say anything about your husband's condition, but there are usually options, obviously limited by the cancer and how advanced it is.

The waiting is horrible, but getting it right is the priority.

Hello Beki

Anyone will tell you with covid and other things, although the urology dept is supposed to be not affected, takes that bit longer, also putting all the information together then having a plan for his treatment, again is important and needs to be right. 
I can understand your worry and his, needing to know.

I’m incurable, diagnosed in 2016, still around giving advice where I can, telling people what to expect if they’ve had the same medication and treatment as me. So show him this there’s plenty of years left in him, both of you will be together for a long time to come, no matter what news you receive, put your feet up, grab a glass of what you like and put your favourite program on. Or like me I buy lots of tv series box sets and have a DVD player, so while my wife’s busy, I just watch a few episodes.

Stay safe

Joe

Hello Beki, my diagnosis was given by the Urologist who said a bone scan was required. Had this the next day and saw him again around 2 weeks later for results who then referred me to the Oncologist. That appt. came quickly, around 10 days later. I was lucky as the MDT were scheduled to meet. I had marked down some questions as the Macmillan pack advises. I suppose the worst thing is to dwell on things. I have just carried on day to day without thinking about the cancer. I was offered some councelling on diagnosis but haven't needed it as yet. Maybe you could look into that if your husband is struggling? Have you a 'Maggies centre' near you. I have been to my nearest in Newcastle and have met some lovely folk, staff are great too and you get fed. Best cheese scones I have tasted and pie and peas for dinner. Hope all goes well, best wishes, Graham. 

Hi Beki

The waiting is the worst bit - I was diagnosed at the end of August 2019 and started RT in the December. HT started immediately but the scans etc took weeks.

Regards

Stuart

Thanks a lot Heinous take care of yourself x

Hey joe hope you’re doing ok, thanks so much for your world of support I am passing everything you guys share with me to him abs I think he is beginning to hear some of it so we will keep waiting and hoping and watching some box sets as you say! 
take care Beki x

Hi graham hope you’re doing ok, thanks a lot for your kind words and thoughts on timings I will look into the maggies canter and have already thought about potential counselling for him when we know what we are dealing with. Hoping you’re keeping well

take care

beki

x

Hi Stuart hope you’re doing ok, thanks, I keep telling him the waiting is the worst bit and hoping things will move quickly after his last scan which is this Wednesday. Hope you’re keeping well

take care

beki x

Hi Beki,

 I found at first that things moved pretty quickly usually within 2 weeks. My doctor first found something wrong at the end of March this year. At the end of June I had my biopsy done under general anaesthetic. I’ve now had my second Prostap 3 injection. I did find times in between as if things weren’t moving. I then found out that my MDT only met on a Thursday. The other problem was that the oncologist & surgeon only met on a Friday. So I could see why it was usually 2 weeks before I heard anything. However I had a PET scan done & they wanted a new MRI scan and this was done within 2 days. Most of my appointments have been over the telephone. Like you it’s the family it hits the hardest. My brothers and sister are really concerned and they can’t believe how well I’m taking it. Personally I don’t feel any different, this may change when I start my radiotherapy in March/April next year. What I do know is that my family will be there for me when the time comes.