My partner has advanced prostate cancer

Hi . I'm sorry to read that your partner is suffering pain. As you're not due to see the Oncologist for another couple of weeks it might be an idea to give his CNS a call to see if this is normal or you could Ask a Nurse here on the forum but you may have a wait of three days for a reply.

I'm not from this group, I have a different type of cancer, but I hope someone here comes along soon to reply.

Sending hugs, B xx

We have pain relief (morphine) so that's sorted; I was just wondering about possible causes. In fact his GP has requested an MRI scan of his neck, which is scheduled for next Weds - don't know if Oncology would agree, and have only been able to leave a message for them so far. We could have done without another appointment at this stage, as he's still recovering from the RT at present.

Hi

Sorry about what’s going on, seems your doctor and oncologist are well up to speed with your partners condition. At present I’am suffering with lower back pain, trying acupuncture for it, ( I try all sorts ) morphine is pretty powerful, when I was on it ( kidney stones a few months back ) it bunged me up stopped me going to the loo. 
How long has he had PC ? What was his PSA etc ? You only need to look at my profile to see the assorted things I’ve been through so if any are like your partner and you are still worried, just chat with us, we’re not doctors but have been through a lot, So has our wives, friends, family and partners.

Stay safe

Joe

Hi as joeven mentioned we might not be medically trained but we know a heck of a lot about treatments and side effects. My Hubby's been on Co-codamol for hip problems (waiting for a replacement) and he had dreadful side effects with constipation so have some Movicol, Normacol or Laxidol to help in that department in case the liquid Morphine causes problems.

My own group is Womb cancer but as my hubby had localised prostate cancer I often drop by to say hello to new members in this group.

I hope the MRI scan reveals what the problem might be.

Sending all the best, B x

He was diagnosed in December 2019, his PSA then was 812, and he already had spread to the bones. His PSA came down eventually, this time last year, to about 5, but has started rising again - the last one we had was in June, and was 75. The morphine does bung him up, we use Cosmocol to keep things moving. He's feeling rather better today than yesterday. I didn't mention, he had a spinal cord compression last October which has left him unable to walk, and had a recent course of steroids which have weakened his legs further, so we'll need a hoist to transfer him from bed to wheelchair. We have the hoist, but are waiting for OT to come and show us how to use it safely.

My partner was on co-codamol, but can't tolerate too much codeine so they put him on oramorph instead, and now he  has a slow-release morphine and just tops up with oramorph when necessary. I'll try and remember to keep in touch on this forum, I'd not had much response from it previously (but maybe I was posting in the wrong place!).

Hi

Well your in the right place now, my PSA was 893 when I was first diagnosed, obviously I’am a little better that your partner, but this is not about me. How’s he sleeping, is he living downstairs? Don’t know how he passes his time, I write books I also have a portable DVD player I watch movies tv series all sorts helps pass the day along, I mention these two things just something that he might try, as tv can be boring. Was anything else offered maybe surgery on his back relieve the pain ? Hopefully others will throw a few ideas in as well, last thing do any nurses come and visit, McMillan are usually good at this.

stay safe

Joe

Hi joeven.....he sleeps OK, yes he's living downstairs, has a hospital bed in the living room. He mostly reads, watches TV, traces his family history. He's got things set up to be able to edit photos - he's always been a keen photographer - hopefully once he gets over the after-effects of the RT he'll be able to start doing that. Currently he's asleep - he had a rather better day yesterday, but is very tired this morning. He's not seeing any nurses regularly - stays in touch with the GP, has carers 4 times a day dealing with washing/dressing/toilet needs, and we can call on the district nurses if needed. He did see the hospice outreach nurse, but said she was "a voice of doom" and wasn't keen on seeing her again. But if/when things get wworse, maybe he'll be more receptive.

How are you? Are you mobile?

Hi . Sorry you'd not had much response to earlier messages. There are about 25 Community Champions covering over 70 different type of cancers. Some groups ie Breast Cancer have 5 champs but there are many forums who don't have any Champs and strangely Prostate cancer is one of the ones without. Our role as Champs is to try to make sure no post ever goes unanswered but due to the sheer volume sometimes some get missed. Some of us only stick to our own groups, mine is Womb cancer, but as I've a little knowledge due to the fact my hubby had localised Prostate cancer I've a little knowledge of the treatments so I drop by.

I read this morning's post and I'm sending you (and your partner) hugs

B xx