Hiya All
my husband had an operation for Matastasic spinal cord compression in Dec last year after 12 years of treatment for prostate cancer. He cannot walk now. His oncologist has given him a life expectancy of 12 months and will not give him chemo treatment because he says he is not strong enough. He is now a lot stronger but still cannot walk. My husband suspects that the hassle of getting him into the hospital for chemo has had a bearing on his treatment refusal. Has anyone had any experience of this? Opinions, ideas etc.
Hi, not a nice place to be, and I sense your frustration.
I've never heard of a doctor refusing treatment because of the hassle of getting him into the hospital for chemo, indeed people with severe disabilities are ferried to and from hospital on a daily basis.
While your husband may well have 'muscular strength', that may not be all that the doctor is talking about. Chemo saps the inner strength of the strongest, and it may be that some of your husbands organs (liver? kidneys?) are compromised too.
But if you feel that your husband is not getting the best care, then you must seek a second opinion: you are entitled to that, and your GP can help you to arrange it.
In fairness, the very fact of cord compression is evidence of advanced disease, and there comes a point when it's sometimes better to enjoy life, rather than fill it with nausea, fatigue and the sadly inevitable side effects of chemo. If it were me (and of course I might think differently if I was in your husband's position), I'd ask for a hospice referral, and get the best advice for making the best of the time left. They'll be happy to visit at home.
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Heinous
If I can't beat this, I'm going for the draw.
Meanwhile, my priority is to live while I have the option.
Sorry to hear you and your husband’s situation. As suggested by @Heinous speak to your consultant for further explanation or gp for second opinion and also hospice referral.
Has your husband already had chemo in his 12 years of treatment, there is limited amounts that can be offered if so. You can only receive docetaxel once. Also depends on organ health I know chemo takes so much and takes time to recover from, I had 6 sessions and it’s taken me close to 18 months and still not back to 100%
I found it best to brainstorm ideas, questions and then ask specialist nurse or consultant for explanation, even second opinion.
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