Chemo and Covid

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Hello all, 

 My chemo journey has been relatively ok, after round 5 did get tired for 4 days had a bit of a heart rate issue but on the whole been ok .  I have been able to lead a pretty normal life.  In week 3 of cycle 5 had both flu and covid jabs .  The specialist nurse team said better to have it than not. So had them and then final chemo last friday.  Sat night started a cough , got worse and by Tuesday chemo team and i thought better get tested . Straight positive , within seconds !  possibly got exposed at blood tests or visit to the vet the previous week. It was too soon after Chemo 6 to be during Chemo. Team advised contact doctor to get AV drugs as a precaution. On line at 0800 submitted details and wait......................14.15 got call from DR who said I needed to call ABC , wasn't sure of the number or what the process was . As you can imagine an internet search for ABC wasn't that helpful.  He said he would call me back .  I decided to call back my hotline , they said   ABC was Sussex/ Surrey Alliance for Better Care .  There was a referral form you complete yourself and they then call for triage , then doctor call and then prescription sorted if Doctor happy.  Chemo team mailed a link to the referral form, completed it 30mins later called by triage , 1.30hrs later by the doctor and prescription issued to agreed chemist and i picked up 45 minutes later.  Great Service and reassuring as  was nervous about the increased risk of infection.   Oh the GP called me back after i had had the triage call with a telephone number still not sure on the system but said call this.  The covid is getting better bit by bit, must admit  a tough week but all in a good cause.   What did i learn , take time to question the process so you understand it rather than the Chemo team saying, we would advise AV drugs you need to go through GP and saying ok . I assumed that meant GP would give me a prescription etc .  If I had understood the process a bit more i would have been able to speed things up, circumvent the GP and been less stressed. Probably have got the medication 24 hrs earlier. ( There is a time limit on the medication. you have to start within 5 days of symptoms. Useful link if in Sussex Surrey  https://allianceforbettercare.org/covid19-treatment/ go direct, great service . Plus the ever great service from the hotline team I am feeling a bit better and hope to be out of my isolation in the house tomorrow

  • Hello Rob ( 

    Thank you for your post - and I am pleased everything has ended up well considering the circumstances. I have just read your journey notes and you have had a good team behind you and treatment without any delays.

    I wish you many low PSA tests now the chemotherapy has been completed.

    Best wishes - Brian.

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  • Me too Brian.  It had gone back up tov 10 to  98 last month having plateaud a bit.  Have oncology meet in 14 days and blood pre that so will know how it is going