Hi, my husband (age 44) was diagnosed with stage 4b prostate cancer last January, Gleason 9/10. He had triplet therapy last year and then radiotherapy on his prostate and his PSA went from an initial 186 down to 0.03. He feels healthy and strong. His PSA went to 0.05 in November which we didn’t think much of, given it’s such a low number. But it went to 0.1 in December (he has monthly PSA tests). This scared the life out of me, but the oncologist said to not worry yet. She seemed of the view that she wouldn’t normally investigate into the PSA reaches whole digits. He has another tomorrow and I feel sick to my stomach. I want to believe that if there is another increase, it’s possible it’s just a small pocket of resistant cancer that we could radio. But deep down I’m petrified that this is the start of him being castrate resistant. We thought we’d have more than 3/4 months of things feeling relatively normal and a period of calm. Not really sure what I’m messaging for right now, other than I’m definitely spiraling and this group has always helped with that! Sending strength and love to everyone on this shitty journey
Hi Anna42 , the problem is that until we get results we are all guessing. A rising PSA is probably an indicator that there is a spot that has escaped, but I don’t think it necessarily means he has moved to castrate resistant. Sending you hugs and good luck for tomorrow.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
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