"What do you wish you had known before starting Radiotherapy"

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Hello All

As part of a new series of blogs sharing hints and tips from Community Members here's your chance to help others.

If you have any practical tips or just advice that might help with anxiety when approaching your treatment.

I hope you will all share your advice and here's the link you need  What-you-wish-you-had-known-before-starting-radiotherapy. These will be shared in a Community News Blog next week.

Everyone is welcome to contribute and we appreciate your help.

Thanks in anticipation

Brian

Online Community Champion.

  • I've shared my tip - it's up to you to add some more.

    Thanks - Brian.

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  • I had 20 sessions earlier this year and discovered:

    1. It's absolutely painless

    2. The radiotherapy itself lasts less than 2 minutes and you're on the 'bed' for around 5mins while the Radiotherapists adjust your position on the 'bed'.

    3. Tiredness started at week 3 thru a combination of the treatment, travelling, waiting for your name to be called and a mild form of anxiety

    4. There is a sort of camaraderie seeing the same faces everyday

    5. Your time slot is loosely adhered to

    6. The radiotherapy machines do break down

    7. How friendly the Radiotherapists and receptionists are

    8. Knowing where toilets are is a must re pelvic radiotherapy and don't be afraid to ask for medication to help with urinary incontinence when radiotherapy ends

    9. It's not a daunting experience, I actually missed the routine (sad, I know)

  • Agree wholly with Phythian 99. A suggestion. I always get to the hospital 45 mins before appt. This allows me time to toilet and thus no rush if they’re in use which they always are. Then to sit calmly and gather myself ready for RT. Done 17 of 20 now and do find if I’m early I get called in early, particularly if an afternoon appt.

  •   ,  I totally agree with all of your points!  My 20 sessions were just under 4 years ago.  I'm now 3 years into Remission.  My PSA is now 0.29, up from 0.17 last time.  Still nothing to worry about. 

    The only thing I wish I had known about was the E.D. that looks like it's here to stay!

    But... even if I had known, I would have still went ahead with the Radiotherapy!!  No worries there!!

    Steve (SteveCam)