PSA drop!!! First Oncology appt

  • 3 replies
  • 116 subscribers
  • 106 views

Update!! Will also update bio with shortened versionBlush 

Today we had our first Oncology appt.....so far our treatment has been first class, we can not fault the service we have had♥️
Best news......PSA has dropped to from 134 to 2.9!!!!!! Absolutely fantastic news.
Oncologist was fantastic, explained everything thoroughly, spent so much time going through all Paul's test results and history.
Today we had BP checks and ECG....all good.
Blood results - PSA 2.9, testosterone 0.9
Alk Phosphate - normal
She showed us bone scan, told us not to panic and explained everything clearly.......bone mets in spine, pelvis, right hip, several ribs, left shoulder and right femur......high volume disease.
T3NOM1b, no gleeson score as biopsies not done but Oncologist opinion is aggressive, at least 8.
No spread to lymph nodes but she did flag up he had gallstones, cysts on liver and a hernia which we chuckled aboutJoy, nothing requiring treatment.
Several tiny lesions on lungs but again, no concern at this time.
Due to Paul's age and fitness, several treatment options open to him -
1. Stay on Degarelix only (he will be on this for life)
2. Take Degarelix and add either abireratone, Enzalutamide or Apalutamide
3. Triplet therapy - Degarelix, darolutamide and docetaxel.....
We have a decision to make, we are swaying towards the 2nd one, Oncologist seemed to think this was best option as it would be good to keep chemo in the toolkit for later and as quality of life is so good, this seems sensible. She also mentioned that radiotherapy will be an option if bone mets start causing pain not controlled by painkillers or there is a risk of spinal compression.
We also visited Maggies, see photo, what a special place that is♥️ .....Will be regular visitors....Paul was reluctant to go but is now considering going to the monthly group for PC

Didn't ask about prognosis today cos it doesn't really matter and who knows for sure anywayShrug tone1‍....just take each day as it comes, none of us are here foreverHearts

  • hi  

    it’s great the Oncologist explained everything and gave Paul options.

    My OH  didn’t get any options and is on Abiraterone and his PSA is undetectable due another blood test 8th September. Been on it now 14 months. A few hiccups but all is well other than fatigue. 

    We visit our local Maggie Centre once a month and we both find it a very calming, safe place to chat. 

    Best wishes to you both & hugs 

    Liz & OH xx

  • Hi Polly1912

    what brilliant news re PSA and sounds like a very informative and positive meeting at least as far as options go.  So happy you visited Maggies I knew you’d be impressed.  Enjoy your break away and return ready to forge ahead with the treatment plan chosen Blue heartTwo hearts

  • Hi Johnam

    My husband due to start abiraterone shortly before RT in November.  Is  the main side effect of Abiraterone tiredness … i know there are so many mentioned ln the leaflet but always hope they will be few and far between Fingers crossed