Hubby starting his radiotherapy

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Hello everyone,

I have been quiet for a while as lots of stuff going on aswell as my hubby's prostate cancer - none of it good ! Anyhow, he has been on HT for 3 months and starts radiotherapy on Weds next week - 20 fractions. He is Gleason 3+4, PSA 5.6 and stage T3a - just starting to nudge the capsule wall ! Anyhow - he is so tired from the HT - my question is, how will the radiotherapy make him feel - will it make him markedly tired ? Thanks love to you all. x

  • Hi Redrose25, sorry to hear you’re having a tough time in various ways not the least with your hubby’s PC. In my own experience I started radiotherapy (33 fractions since I’d previously had a radical prostatectomy in 2018) at the end of March through to the 7th of May . For the first 4 out of 6.5 weeks I mostly continued to work. Being a sales rep it wasn’t a physical job but the driving was still tiring. The last 2.5 weeks I pretty much went home after treatment since I was getting fatigue. The hot flushes from the hormone injections disturbed my sleep and I had to go to the toilet more due to the radiotherapy so that didn’t help things. A few weeks on I’m still easily tired but have some more energetic days than others. From the 7th of May I worked continuously until I retired officially on the 18th July so I’m hoping to actually get my breath back at last. Still on injections for another 5 doses and they give me sore joints , muscles , the dreaded flushes and fatigue. I was lucky to be declared undetectable after my treatment and my consultant stated I could stop the injections but as they are administered to do a job I’m staying the course and the side effects are a small price to pay. Sorry for a rather long winded answer but hope this gives you an insight to what lies ahead. Any further questions please feel free to ask and I wish you both the very best on your upcoming journey Heart️

  • Hi  

    sorry your having a rough time but hopefully once your husband has his treatment all the other stuff went lol allow you to settle down . 

    My OH is fatigued with the HT and it certainly made things more tiring during his RT ( 6 fractions over 6 weeks )  He decided he would continue to walk every morning before his RT and sometimes again when we got home . He also goes to the gym at least 3 times a week ( more like 5 or 6 ) . I often tell him he’s nearly 74 and he should take life a bit slower but as well talking to the brick wall.  Everyone he spoke to medically said to get exercising as it helps with the fatigue. 

    best wishes & hugs to you both 

    Liz & OH xx

  • Aww thank you for your reply. My hubby is 58 & still working in quite a physical job but refuses to give in ! I hear you when you say its like talking to a brick wall - lol! I have tried to make Sunday dinner today but he has taken over saying I am a job thief ! I just hope he is kind to himself during his radiotherapy - I may need to be firm with him as he loves his work. x

  • I’ve come to the conclusion with him . That he will continue doing what he wants but if he needs a break I encourage him to  have a nap and he’s now accepted if he falls asleep on the sofa I waken him and tell him to go to bed . At the later end of his RT ( heavy doze) he was sleeping a lot but it’s maybe one day in every 10. So he has improved a lot xx

  • Thankyou - yes I don't think my hubby appreciates the long road ahead sadly - he just keeps saying 'I'm fine' - when I know he isn't ! Sending love. x

  • Thankyou for your reply - it's starting to feel very real now. x

  • Aww thank you - he had a snooze on the sofa this afternoon so he is hopefully starting to listen to his body ! However, he is a workaholic & refuses to give in with work ! I need to have a serious word ! x

  • You could get the radiologists to have a word in front of you telling him he will feel more fatigued and he will need to rest . Might be worth a try . What we do for our loved ones  

    I hope you are doing ok ax it’s a couples disease . 
    take care too 

    Liz & OH xxx

  • Aww thankyou - yes I will try. So much stuff going on right now that I don't know if I am coming or going ! x

  • Don’t fret too much , his body will tell him when to put the brakes on and he’ll realise that rest is needed