On Tamsulosin for 9 years.

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I was diagnosed with BPH (Benign Prostatic Hyperplasia) over 9 years ago. This was because I was having problems emptying my bladder and my 'flow rate' was quite poor. The diagnosis was arrived at following the usual DRE (Digital Rectal Examination) and a urine flow test along with an Ultra sound test to see whether my bladder was emptying. This resulted in being prescribed Tamsulosin to ,I believe, relieve the pressure my enlarged prostate was having on my urethea.
In March of this year, whilst having a blood test for another problem (PMR) , I asked whether I could get a PSA test at the same time. Fortunately the nurse agreed.
As it turned out, my PSA result came back with a reading of 6.45, which is high for my age group. This sort of set alarm bells ringing and I was referred to hospital for a MRI scan which actually showed up 'abnormalities' on my prostate, leading to an eventual Biopsy a few weeks later.
Unfortunately the outcome of my biopsy was a cancer diagnosis , with a Gleason count of 7 ,( 3 + 4). The team at the Royal Marsden considered my cancer as 'clinically significant' basically leaving my only options as either TURP procedure followed by a course of radiotherapy, or a Radical Prostatectomy. Given the timescale I opted for the latter which was carried out 4 weeks ago at the Marsden in Chelsea. The next thing for me will be a PSA test next month to see if there are any cancer cells remaining (fingers very firmly crossed!).
The 'issue' I have with all my trials and tribulations is why, despite being diagnosed with BPH over 9 years ago, I was just given repeat prescriptions for Tamsulosin for all that time with never having my condition reviewed? Had I undergone a PSA test, say, after 3 or 4 years of first being diagnosed I may have avoided radical surgery (in other words, found it a lot earlier). I know there's no national screening for prostate cancer but surely if your already known to have BPH a check or review should have been carried out earlier?

  • Helllo  

    A warm welcome to the Macmillan Online Prostate forum, although I am so sorry to find you here.

    I do hope the recovery from the surgery is going well - and I wish you well at the next PSA test.

    I can't give an exact answer to the Tamsulosin question - however I suspect 9 years ago it was prescribed by your GP as an answer to your flow issues and just kept on repeat as it was working. 

    I have full access to my NHS records on the NHS app and keep an eye on what my GP puts after any test results - they are quite fond of the statement "OK for this patient" without reviewing the case. I have had to contact my GP twice in the last 3 years over this statement. Once it needed some medication adjustment.

    Best wishes - Brian.

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  • Yes I agree the Docs treating you should have reminded you to get regular PSA checks or instgated them themselves - at least annually but often they don't.  We need to be proactive and ask for the tests ourselves.  I advise any man in their mid 40's to ask for a PSA test at least every other year and from age 50 to 55 every year.  I know some have problems getting their GP's to do this but you can get the test done privately which is something I wish I had done as like you I had various problem with enlarged prostate and had a TURP in 2004 to assist with flow.  Thankfully during the TURP they take material away to be biopsied and no cancer was present then.  I did continue to have annual PSA tests which my GP was loathe to do so I then got the urologist at the hospital involved and got him to write to my GP so managed to get regular tests. 9 to 10 years later my PSA began climbing over the "higher side of normal"  which resulted in my  PSA rising to 9 when I asked my GP if I could have PSA checks more often and didn't he think that was worth a referral - he refused and I should have gone and had tests done privately because the next year it had gone up to 13 and I was then sent for biopsy which gave the same Gleeson Score as yours and an MRI which gave a staging of T2 or T3 as the MRI showed the tumour was at the edge of the prostate so cancer cells could already have escaped into the surrounding area.  It was then thought that the best route for me was to have 9 months of Hormone Treatment (HT) and a month of radiotherapy which would treat the whole area.  The Oncologist at the hospital was surprised that with my history I hadn't been referred when my PSA reached 9.  Anyway that was nearly 9 years ago now and my PSA is undetectable everything is back to working as well as it did prior to HT and RT  so it seems like a "cure".  Still have annual PSA checks and I do get concerned before them but so far so good.  Please tell all your male friends and relatives to ensure they have PSA tests regularly remembering that if you have close male relatives, Father, brother or have sons your diagnosis of Prostate Cancer makes them about 3 times more likely to get it as well.  3 years after my diagnosis my younger brother was also diagnosed with Prostate Cancer but thankfully he was 2 years younger than I was when diagnosed and diagnosed earlier in the progression so could have Brachytherapy..  My sons are both having regular checks and so far so good.  They are at a higher risk as their Father and 2 Uncles (both my brother and my wife's brother were diagnosed with Prostate Cancer).  I thought I was doing everything right by getting tested but really wish I had gone with my gut and had more regular tests once the PSA got to 9 or had a private consultation with a urologist.  We can't turn the clock back but we can help other men to access tests and treatments earlier.