When should we worry?

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Hi

I guess I am looking to put our minds at rest and I wondered whether anyone can help after the wonderful and encouraging words you guys have provided already.

It is hard to put into words, but my poor husband felt "funny" earlier and started panicking that this was the start of the end.

His head felt funny and his nose was all blocked up and he really gave himself a scare I think.  I tried to reason with him that surely PCa wouldn't just cause him to "drop" suddenly?

He shared his fears and it seems like every time he feels anything going on in his body, he thinks it is the beginning of the end.  I suggested that we ask the oncologist at our first appointment  on 2nd August if there are any particular worrying signs that we should be aware of that would necessitate going to hospital or anything like that? Is this right do you think, or is anyone aware of what we should look out for?

I am sorry if this seems like a silly question, but I am bereft and just want to help him see or realise what we do and don't need to look out for? It is all still so new and raw just now.

I am sure that when we are further into treatment and we can see it working (hopefully), our panic will settle somewhat and we can look forward to living on this new path.

Thank you for reading.

Amanda

  • Hi Amanda , we are pretty new to this forum . And ever sniffle my OH has right now he is the same . He woke up with a blocked nose this morning and wondered if it was the HT. I feel exactly as  you are . I ended up calling the oncologist secretary on Monday to ask for an earlier appt as we weren’t coping well . She apologised that  they didn’t have any but offered to transfer me to the cancer hub  at the hospital my OH is attending where specialist nurses will speak to you . We have found that most helpful as she listened to  our concerns and gave us a direct contact number to call anytime even if it is trivial as she  said they keep you up at night worrying . Best wishes to you both Liz x

  • If you need specialist advice you can call and speak to a specialist prostate cancer nurse call the Prostate Cancer UK helpline a free phone number: 0800 074 8383.  The lines are open: Mon, Tues, Thur, Fri from 9am to 6pm and on Wednesdays from 10 am to 8pm.  My wife and I had a lot of help and advice from them as I couldn't always get through to my nurse keyworker at the hospital. 

  • Thank you Liz!

    It is hard to watch isn't it.  The lack of control around the situation is a very steep learning curve for me as I have never been this powerless before.

    I have taken comfort from the encouraging words posted by you all and we are feeling better about things today.

    We do have a number for the cancer specialist nurse and we will look to use them if needed.

    Warm wishes to you both. Thinking of you. 

    Amanda x

  • Thank you, I didn't know this.

  • Hi I didn’t know this . Thank you freefall 

  • Hello  and  

    Don't forget we have the Ask a Nurse facility and here's the link:

    Ask a Nurse 

    There maybe a delay in any reply depending how busy they are:

    You can always ring the support line on 0808 808 00 00 (8am to 8pm 7 days a week)

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Thank you Brian much appreciated x

  • hi Amanda Just take care and keep in touch as we are all in the same boat as our OH. are in a total learning curve as we are xx

  • This group is great isn't it!

    Thanks Liz, you too x