Side Effects to Prostap

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A few days ago, I got a Macmillan  advice of a new forum entry about possible side effects to Prostap,    Every time I click on it, it says "being reviewed!" or something like that - Why has it not appeared? - I am very interested in what replies  may be  forthcoming

  • Hi Cambrian, I’ve been waiting for this one as well to see what came up. I’m getting my 4th injection on Tuesday and I’d be interested to hear from others. Personally I feel a fair bit of joint stiffness, muscle weakness and fatigue at times. The hot flushes although maybe not so frequent are pretty intense at times , especially at night. This wakens me and then it’s time to go for a pee and if this occurs a few times there’s another night of disrupted sleep. My specialist did state at my meeting after my RT that because my PSA was undetectable I could speak to my GP and come off the 2 year course, but, as this was originally the timeline I have decided to stick with it. Hope this gives some others a bit of an insight on things whereby they are not alone on this treatment plan. Best wishes to all Heart

  • Thanks Beefy.   I have been on Prostap since 2021.  No side effects for three years, then same as you, joint stiffness, muscle weakness and fatigue.    The hot flushes do not bother me much, usually come in the night, but not often.  I just fold the bedclothes back and wait for it to cool down, after which, I go to sleep quite easily.   I have not had surgery or radiotherapy.   I am now 81 and have never had any pain from it, but these side effects are really wearing me down, and I am fed up of "see your GP!"    GP says "everything has side effects, even crossing the road !"   I have been crossing the road on my own for more that 70 years, and never had any side effects from it!     When lying down, or sitting down, I feel quite normal, but start moving about and "wham" side effects!     I still hope to hear that something can be done about it!    I generally sleep very well.    Get up sometimes 2 or 3 times a night, sometimes not at all, but always back to sleep easily.

  • Hello  

    Nice to hear from you again.

    If the post is "being reviewed" it will appear once the staff have checked it's contents. If it doesn't then it must have broken the Community Guidelines.

    Best wishes - Brian.

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  • I don't know if I should chip in at this point or not as your original post is still held by admin but here goes...

    I was started on Prostap in September 2023 and continued through my RT in late summer 2024 and until my last three months implant in October 2024.
    The only side effects that I have had either during or after the Prostap have been, hot flushes, penile atrophy and ED. The former is still much the same at about an average of twelve flushes per twenty four hours the atrophy has been much remedied with daily 5mg Tadalafil and there is a suspicion that the ED may at last be improving.
    My hospital trust tell me that penile rehabilitation is something that they are planning to offer to patients soon, (lucky bu88ers).

    Joint stiffness, fatigue or muscle weakness have never troubled me. I am almost 77 and no more that of average fitness.

    Edited -- I forgot to add the small weight gain which amounts to best part of a stone, sorry I'm still in the age of imperial measures.