Hello Everyone
Yesterday I mentioned that I am having troubles withstanding the Hormone Therapy due to Cirrhosis (I havn't drank since July 2021)
On July 14th 2021 I was admitted to hospital as I was unable to Pee - Fast Forward to August 22nd I was discharged after 40 (40 Days) - I had every scan under the Sun from X-Ray to Nuclear Isotope all came back clear even the Physical Examination.
In December of that year I saw an experienced urology Consultant who examined me and said he had "Grave Concerns" about the Right Side of my Prostate - Another round of Scans back to his Clinic
He Pointed at the Screen and said I had Stage 4 Prostate Cancer with enlarged Localised Lymph Nodes (3 times too big) also an Abnormality at the Sigmoid Junction of the back passage and a Thickening of the Bowel Lining.
I mentioned the Scans in the Summer and he went to another Page on his Screen where my end of July CTScan was already loaded - this time he said and put it in writing "that with Hindsight the Abnormal prostate and Enlarged Lymph Nodes are Visible"
I have no idea what options I would have had if it had been seen 5 months earlier - However then I only had Hormone Therapy or a Bilateral orchidectomy as they couldn't touch the prostate it was just a Dense Tumour
I will keep saying/writing this until I die
As I wasn't after Money I went down the Ombudsman Route - I wanted the Radiographer mentored at the very least and the Junior Urology Doctor who examined me retrained.
Long Story short the Hospital sent me 6months late copies of everything I had eaten been prescribed etc during my 40 day stay it was an enormous many thousand page Bundle perfect for hiding the truth - the Ombudsmans "PET" Radiographer said that the abnormal prostate Scan would be like looking for a Needle in a Haystack - However as there are only 6 things in a Mans Abdomen and my Lymph Nodes were 30mm instead of 10mm - that was just Hurtful and demeaning
Everything I've written here is Honest and Correct there should not be any reason that this Post should be removed.
OK - So now I have a Degarelix Injection whenever my PSA rises - Worth noticing that after I had the initial recommended 240ml Dose of it my PSA and Testosterone remained negligible for a year - so Hormone Holidays could be taken more often
atm I am pestering my Urology Consultant to look into Hormone Patches and Creams which can be applied to the inner Thigh - directly entering the Bloodstream before the Liver - However he is obviously a busy Gent.
I would also love a Ballpark Figure for how long I have to Live - Should I plant Bulbs in my Garden for Spring - Should I get better long wearing Carpets for the Bungie - I opted to die at home and whenever I walk into my Bedroom I am aware that it will be there that I will be Bedridden - I asked the Medical Staff on here but havn't received any reply - Not sure if that is what I should have done :(
Hello
Thats a bit of a story, mine slightly different, before they found my cancer, I was with another doctors, let’s say I had lots of different blood tests taken, but not PSA, when I found this out I comforted them and they said I could take it up with the nhs, I got all my doctors notes cost me twenty five pounds and sent them to three solicitors who deal with this thing, each one rejected it. I gave up trying.
Why have you not been offered chemotherapy or radiotherapy? Hormone is good but these are the main fighters to reduce everthing.
Stay safe
Joe
Hello Joe
They wont go anywhere near to the prostate now as it would spray the Tumour even quicker than my Lymph Nodes are doing
When I looked into it directly after my Diagnosis I saw many treatments available if caught soon enough including Steam downwards to the Prostate or even have the prostate Removed - I think the state of my Liver may have affected how Chemo or radiotherapy worked as I have Varicous Veins in my Stomach Lining and Oespharagus which need to be left alone
Thanks for the input
Best wishes
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