My story

Welcome NeverGiveUp and thank you for such a positive post. It sounds as if you are in a good place with thanks to your friends and family and your own determination. As you say a positive attitude is essential and this, along with excellent medical expertise, has got many of us into a position that has far exceeded initial expectations.

You will find that we are a friendly bunch here with sometimes a wacky sense of humour which definitely helps. Remember the help here is not just for you but also your family. If you are not sure about anything or want practical tips then someone here has already experienced it, worn the teashirt and is willing to share.

I am sure your experience so far is an inspiration to those considering their options.

Please continue posting with updates or if you just want to say hello. All the best to you and your family.

Good luck I would have gone down the same path but sadly it had already broken out of my prostate t3b and starting radio therapy October.Hopefully you cured especially at your age

Hello NeverGiveUp - A warm welcome to the group - as Alwayshope said we are a decent bunch.

We have had a good week on here for positive posts and although you are young and I am sorry to see you here I am pleased to see it's all going well. Long may your recovery continue.

The positive attitude to me is half the battle and like you my diagnosis was a benchmark in my life. Everyday is now the next day of my life and I grasp it with both hands.

Just a heads up some of us have our Prostate Cancer journey documented and you can read mine by clicking on the icon of the beach. I am in the HT/RT route but you will find plenty on the surgery journey.

Keep positive and I wish you well on your first assessment after the surgery. Keep us posted.

Best wishes - Brian.

My husband also had the surgery nearly 3 months ago and where he is now is far better than expected.

If you look at my profile you can read about our journey.

I hope you're result is good at your review.

Thank you 

Never give up hope, just read your 'story'.  Men are getting diagnosed younger and younger.

It is amazing the support you get from some people.  I found it very hard to open up at first (then the hardest thing was trying to tell people without bursting into tears, of course the hormones didn't help).

Glad you are making progress.

I kept a thought diary from day 1, now some 2 & 1/2 years later I am still going with it.  

I'm now in remission (for 18 months), but it's the rest of me that's falling to bits.

Work are making me redundant, basically because I have a walking stick now and my disabilities are visible.

As everyone says, keeping a sense of humour really helps.

The folk here in the Prostate forum are brilliant.

Hope your first assessment goes well.

Sorry, I referred to you as never give up hope.  

Hiya,

Thank you for sharing your journey and I'm pleased you're doing well.

My husband has just been diagnosed with prostrate cancer , gleason level 9. He had a bone scan and was told it was still contained so he's opted for a radical prostatectomy too. 

1. My concerns at the moment is that they have said the waiting list is 5mths! I'm so stressed with the time frame....we are not wanting it to spread, just wanting it out ASAP! Any advice welcome  xx

Good morning Litterlatters.

A very warm welcome but sorry that you have had to become part of the family under these circumstances. It would help if you could give us some ideas about the TNM score from the biopsy and any other information you may have as this can help give you more targeted information. Having a Gleason 9 score does mean that the cancer is potentially more aggressive and so the treatment will be more comprehensive in order to mop up any possible spread. With this score it is usual to be put on to hormone therapy which will immediately put a brake on cancer by cutting off it's food supply of testosterone so that would be the first question to ask about. It then gives you time to sort out the next step in treatment. As your husband has been offered a prostatectomy then this says that the experts think your husband is CURABLE which is good news. As far as having the procedure done then make sure that they know you will take a cancellation at short notice or possibly see if it can be carried out at a different venue? 

This is very much a couples disease so make sure that you both keep as fit as possible and have a positive attitude as this really does help. Our oncologist told us that he could do 50%, the other 50% was down to us in terms of positive attitude and lifestyle changes which includes diet. Make sure that you keep a note of all meetings, who you spoke to and their contact details. Two heads are definitely better than one as we all remember different things.

This is a really friendly, helpful group who are willing to share their experiences and help wherever possible. No question is too small or silly as we have all asked them in the past so ask away and I am sure others will be along with their words of wisdom.

I have now moved this response to Litterlatters own thread.