Can You have spread to bones without it spreading to lymph nodes. husbands scan was clear for lymph nodes but still has to get bo e scan but consultant said he confident bone scan will be clear as he knows how it works?
I'm assuming as given you already have an idea when treatment is to start before he's even had the biopsy report that you are going private.. I dont know how the private system works but until you get the results of the biopsy you cant know what is the best type of treatment. I went with the NHS and the only delay was coursed by my having to decide between surgery & RT (I believe other options are available via private treatment.) I was in favour of surgery (I just wanted it gone) but after I saw the surgeon (who is also big in local private surgery) who ruled out keyhole surgery as he 'likes to gt his hands on it! And said he couldn't commit to saving any of the nerves (until.he'd got his hands on it)! He also said he thought Id probably need RT after surgery. I then spoke to the Oncologist who I had much more faith in and I'm pleased I did. I felt Tamsulosin really did work and is still helping. I had 32 samples taken and although it wasn't nice it was barrable and I had little or no side effects. I've met others who had less than half my samples taken and didn't take Tamulsin and couldn't stand it and had problems for some time after the biopsy. I dont know how they can possibly know how long it will take for him to recover from which ever treatment he has because they are always saying everyone reacts differently. Personally I would get your holiday in before treatment. I would have thought the one benifit of going private was you can choice when you have your treatment.
Aww sorry no he hasn’t been told any treatment. Am just speaking about them saying he will take time to recover from the biopsy so we were not to book a holiday but yeah my husband has already decided whatever they say we will get at least a week away before starting any treatment. As his prostate is enlarged and also has urine flow symptoms which he has for a good while. yes we are private but seems to be less communication and waiting suppose the problem of them doing things back to front. Suppose there are advantages and disadvantages going private as some tests have had to done through nhs. can’t wait to just get all the results and answers and find out for sure what we dealing with.
Just to advise you, we wanted to go abroad after the biopsy and bone scan and before the radiotherapy. The cost of travel insurance for just one week in the Canaries was more than the cost of the holiday! We were told that our annual insurance with a major bank would cover him at no extra cost once he had completed radiotherapy. We’ve not pursued this yet!
I had my biopsy January 2022, within 24 hours. Then had PET scan later same month & got final diagnosis early February Gleason score 3 + 4 =7. Spent March meeting Consultant surgeon & 2 oncologists, first convinced me to start Hormone therapy (HT) before I decided on type of treatment, second discussed RT which I decided on, particularly because I'd already started & that was my main concern about having RT.
In April we did a 150k walk along the Portuguese coast. We went with Easyjet and used their travel insurance. It doesn't cover pre-existing medical conditions and they don't ask any medical questions. We took the view that I was more like to need the insurance to cover, Covid, lost cases of breaking a leg than I was to have prostate related problems, so took out cover for the weeks holiday, witch I think cost less than £30 for both of us! We didn't need to claim.?
Had 20 sessions over 4 weeks in July at the Churchill Hospital in October, I can't praise them highly enough, they were kind & professional a great example of the NHS at its best. RT side effects got harder after the first 2 weels. Had to go on a low fibre diet for second half of treatment and started to slowly introduce Viber back into diet for about a month after RT. Symptoms come and go for about another 6 months, but you learn what food and drink is likely to upset your bowles.
I've ? been on HT for almost a year. My energy levels are good although my muscles are weeker. Hot flushes & night sweats still bad although again you learn what is likely to make them worse. For me it's definitely eating larger meals or eating too close to bedtime. I've virtually cut out alcohol, although still have occasional drink but mainly lunchtime. This is my experience. You have to remember everyone is different and reacts differently to treatment. I've met some who sail through treatment and seem to have no problems & others who years later are still suffering. One side effect that everyone who is or have been on HT complain of is mood swings, depression or simply feeling sad. I've had all of these and often wake up overwhelmed by a feeling of sadness, although all you can do is remind yourself that's the HT causing these feelings. I also find d getting outside walking helps.
Hey all so far husband has had psa 30.4. Bone scan, MRI, CT scan has confirmed prostate cancer with involvement of seminal vesicles. Thankfully there is no involvement in lymph nodes or any other organs, and bone scan clear. He is getting his biopsy’s tomorrow so we need to wait to see what type of cancer. But have been advised treatment will be radio therapy and hormone therapy. Anyone have any experience of this type and has been told potentially cureable is there a chance it not cureable.
I’m glad you now have that part of the diagnosis It was a great relief to us when we got the call to say bone scan is all clear.
My husband was diagnosed as T3aN0M0 which is locacally advanced prostate cancer breaking out of capsule but not spread to any other organs. His letter prior to the bone scan said he was curable however if anything showed up on the bone scan he may not be curable and treatment plan may change accordingly. Fortunately that result was good so he can now carry on with the treatment plan which is hormone therapy Prostap3 injections every 12 weeks. He started bicalutamide tablets (only taken for first 3 weeks) at end February followed by the first Prostap injection in March. He has an appointment to see the oncologist to start Radiotherapy in July.
He has been fine so far following first injection. We just feel settled now that he has the full diagnosis and know what we are dealing with.
Wishing you and your husband well with his treatment.
Hello, My diagnosis was PSA 13 Gleason 7 (3+4) T2 (possibly T3) N0M0. the possibl T3 diagnosis was given because the tumour could be seen to be pushing out of the back of the prostate on MRI and the urologist and oncologist were worried that microscopic cancer cells which would be too small to see on any scans could already have escaped so the MDT team decided that HT followed by RT would treat the whole area and get any microscopic cancer cells that may have got out. I had 9 months of HT and 4 weeks of RT over 6 years ago now and my PSA is still undetectable. If any cancer cells had got out they have also been successfully treated and I am glad this decision was made as would not have wanted to have gone through an operation and then further on down the line still have had Radiotherapy. To all intents and purposes I have been 'cured 'which was what my urologist promised. Though every annual PSA test does cause a little anxiety until the results come in.
It is so very encouraging to hear of cure! I realise now that, since my husband finished radiotherapy last week, the thought and risk of recurrence has been shadowing my thoughts daily! I haven’t even dared look at the stats for complete recovery and I know each PSA test will bring the ‘what ifs’ to the fore. Your experiences have given me hope and also made me realise we should concentrate more on ‘today’ and not the ‘what ifs’ I’m so very pleased for you!
