Not sure if I am duplicating this on another part of the site, but my husband (77) was diagnosed with advanced prostate cancer about a year ago. He has multiple bone mets throughout the skeleton and whilst initially on Firmagon (hormone therapy), he has changed to Prostap as he had too much pain from the first.
He has bladder incontinence which is manageable by wearing pads but has been having often uncontrollable diarrhea every day for nearly four months. He has had an endoscopy and a colonoscopy so far and oncology say nothing to do with the cancer. He recently had an MRI to rule out spinal compression and a contrast ct scan. Nothing sinister found that they didn't already know.
However, my biggest worry is that he can no longer can eat. I have tried everything, obviously including his favourite foods. He can manage sweet things like fruit, yoghurt and soft deserts but he just cannot mange more than a couple of mouthfuls of any savoury food and is having Energy drinks supplied by the doctor.
My questions are, do other sufferers have bad diarrhea and is total lack of appetite and inability to eat normal. He is going downhill so fast and also getting dehydrated too. I am at my wits end trying to help him.
Stromness,
Have you seen the Spanish City lately? You would never think it was the same place. Only the White Dome is still there.
From a good distance away, to see the White Dome and think "Spanish City".
When you get there you don't recognize it.
Steve (SteveCam)
Stromness,
Did you ever go along the road where the Beehive pub is?
It's still nice and quiet there.
I think Gina is amazing!
I know that I found that my sense of humour kept me sane. I can always find something to laugh about.
Hope you're doing well.
Steve (SteveCam)
Hi Steve
Afraid Beehive not on my radar.
Totally agree Gina amazing.
Please keep us up to date about Richard, Gina. And if you have a minute I'd love to hear about your work in Fleet Street.
Doing well thanks. Hope same goes for you. Prostap injections hurting less and less. Hope that's good!
I think only two more to go then I'll be on eggshells as to PSA readings.
Stromness
Hi Stromness,
What a daredevil you were and I am impressed you saved up.
I have a very sensible younger daughter of 43 who has three children, works in a 'special school' and who has just decided to take her motorcycle test, passed and is whizzing around on her motorbike. Yikes, I thought I was going to be able to stop worrying about my children and then the throw this extra worry at me!!!
Thanks for your good wishes. It can't be easy for you either. I am just a carer, it is Richard who is having to go through it.
Have a great weekend
Gina
Hi Steve, yes, think you are right re "the man thing". My daughters and friends will all concur that you guys certainly get "man flu" rather than a cold, which we delicate and fragile females merely take a tablet for and GET ON WITH IT!! Wish this site had emojis but when I put them in, they replace some punctuation and in the wrong places. Such useful little faces which can sometimes avoid misinterpretation if phrased in the wrong way!!
What is the reasoning for the Budesonide with you? Richard seems to be improving in the bum department but still has pain in his side which the doc thinks is his duodenum which was inflamed, along with his stomach and oesophagus according to the endoscopy. You were on it before for the oesophagus, is it the same and did it help?
Have a great weekend.
Cheers
Gina
Gina,
You should have seen the state of me when I had my first Hot Flush. Didn't know what was happening!
Gina I do the Macmillan all from my phone and the emojis pop up all the time with the predictive text.
What about the Poo emoji? I think it's great.
Anyway, back to being serious. I have Oesophagitis, which stops the food from traveling all the way down my Oesophagus. I get involuntary hic- ups and spasms, they progressively get more and more. I can feel the food working it's way back .
Sometimes it calms down and stops but sometimes it keeps on going until I am sick.
I know when this is going to happen and I have about a minute to find a toilet.
I was on Omerprazole and a steroid inhaler. This has been going on for over 5 years. When I saw the specialist last June he put me on the Budesonide instead of everything else. This worked wonders. Then in December I had another Endoscopy and that just put me back on the slippery slope.
Couple of months ago he said I could try the steroid inhaler again and prescribed some Peptic (like a super strong Gaviscon). It worked a bit.
Last week he said that he might put me back on the Budesonide. I see him in August for a Colonoscopy.
Me and cameras, don't know what the fascination is!
Glad to hear Richard is improving.
Re your reply to Stromness, you are not just a carer! What you are going through can be just as hard.
My partner is there all the time for me. I couldn't manage without her!
Have a good Sunday.
Steve (SteveCam)
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