1 week away from my first year living with my diagnosis

Hi Chris, my diagnosis day is 27 January, 1st year just past and I fully agree with everything you said.

It's great to hear you are doing so well, long may it last, all the best Ulls

Hello there!!

I can’t think of a better gift for Christmas Steve! Mr Louli is absolutely smashing it for now with Zytiga and Prostap keeping his PSA at 0.1. It was below that but a little nudge up last week.

Anyway, as you say anything below 2 is good and can keep us all happy for a long time to come I’m sure. Happy Days!!

keep up the good work!!

Louli 

Louli,

Great news about your husband.

Louli

Great to hear Mr Louli is smashing it!  Long may it continue for you both

Ginny

Well done Chris, I'm the same diagnosed with advanced prostate cancer in Feb 21, first injections 8th March then enzalutamide in April my psa has gone down from 305 to 0.007 which is undetectable. Yes I agree the treatment is harsh with bone pain and fatigue but managed to go to work part time and play 5 aside football. Asked the oncologist what's plan b and he said I'll be on this treatment for a good few years. Totally agree about the prostate forum to read everyone's questions and answers has been a great help to me. I know I won't be cured but with the many treatments out there I can live a little longer. All the best to every one and their treatment. 

Hotflushlva,

I know you get used to the hot flushes.

Wow, your PSA levels, I thought mine was high at 12.9 when I was diagnosed.

The Hormones and Radiotherapy brought mine down to 0..9

Best of luck with your treatment.  Hope you are not on the Hormones as long as they say.

I was initially told up to 3 years but in February I was told that I didn't have to have any more Hormone Injections.  As long as my PSA levels can stay between 0 and 2 (see what happens when my Testosterone starts up again).

Hi Steve my diagnosis was grade 4 which had spread to groin and lymph nodes as well to some bones so told I would be on this treatment until my psa rises. I haven't had chemotherapy or radiotherapy yet, the oncologist said he's keeping these in his back pocket. Glad to see your in biochemical remission and that it lasts a long long time.

Thank you lovely lady! X