Looking for some advice for my dad

The HT can give pain as has already been said and it would generally be muscle pain so could be in any muscle.  What HT is he on? 

Has he tried co codormol? That’s what I take for pain, you can get it in different strengths, there are plenty of pain killers out there, just depends what your tolerance is.

The HT my father is on is Abirapro - abiraterone acetate.

He normally complains pain the right leg but off late he says pain in the shoulder , sometimes in the  back and sometime ribs.

No he hasn't tried codormol. Will check on that, thanks.

Going to try physiotherapy to see if it helps.

Arbiraterone is supposed to be very good.  My brother-in-law John, unfortunately died of Prostate Cancer some years ago before arbiraterone was available and his widow often meets his consultant at various P Ca charity events and he has told her that if arbiraterone had been around at the time John would have had many more years.  Have you checked arbiraterone side effects online.  I don't know whether it has more or different side effects to other treatments.  You may find the side effects listed on NHS website which would probably be the best place to look.  Hopefully someone here who has experience with arbiraterone will also come on and give you some more info.

All the best.

Des

Here is my story since 2012 and it has been a journey of ups and downs FYI. Hang in there and live your life to its fullest-Jada

6-16-2020

Started chemotherapy today and prednisone 2(5mg)

5-23-2020

PSA 14.6

I had bone scan and ct scans. I am having increase of metastatic disease so will change meds. I will see Carr Thursday and go from there.

DECNodules on adrenal glands and PSA up to 3.91 Still taking Enzalutamide

Dec 02 2019

I had a CT scan 11/26/2019 and the right adrenal gland had two nodules that got bigger in past 3 months. If prostate cancer we will see if albiterone(Zytiga) and prednisone are working to slow the growth and drop the PSA. I am feeling good and still golfing and walking in HHI 5-6 months a year. Still praying for a cure

8-2019

PSA 2.21 Ihad CT of abdomen again to compare with July.

My adrenal glands showed no changes so sontinue with Xtandi

7/2019

CT scan- concern about 2 nodules on adrenal gland right and new cyst on liver. PSA up 1.57

Continue on Enzalutamide and Xgeva

6-14-2019

PSA up 1.52

I got my Lupron shot for 6 months 12/13/19 from  He felt no clinical trials at this time and continue on Enzalutamide Xtandi until PSA got to 3.0. Will discuss with Dr. Carr and see.

5-23-2019 PSA is up to 1.07 so wants me to have a CT of abdomen/chest and a total body bone scan. We will probably go to albiterone and prednisone in July. We are going to look into some clinical trials to see if we can slow the beast down.

Diary DLBurns PCa

7-11-18 PSA 1 from 24.8

I have bone Mets in thoracic vertebrae so started Xgeva to strengthen the bones to prevent fractures. No lung cancer from CT scan just taken

Started 4 40 mg capsules daily of Xtandi ( Enzalutamide) May 11, 2018

PSA 24.5 5/5/18

PSA up to 24.8 on Lupron and ketocanozolefrom 3.5

May 13 2018

We are moving on to Xtandi 4capsules 40 mg once a day plus 6 month lupron injection. I met with my Doctor and felt we have kicked the can down the road long enough and must use antiandrogen meds now. I then met with prescription nurse and went thru side effects which are many. I then paid my copay $2840.00 for first month and will total $9,000.00 for the yeaexpensive meds however giving memore time waiting on the cure. Trying to stay positive and enjoy what I have going: golf, family and friends to help me. 

PSA 2.22 August 2019

PSA 1.57 7/2019

PSA 0.1 08/19/2014

PSA 15 11/12/2012

417StartedKetoconazole

2-1-2017

Surgery  removed upper left lung and biopsy came back carcinoma in Situ with no lymph node involvement

1-2-2017

Since PSA was rising I went to oncologist who found a lung adenocarcinoma that needs to be removed Wednesday 2-1-2017. I will see if we need chemo after biopsy of lymph nodes.

PSA GOING UP- 0.1 to 0.3 to 0.7 as of 10-1-2016

Nov 01 2016

My PSA is rising again to 0.7 after a month retest. My doctor wants me to stop Casodex and do another PSA in a month and then have consultation on next strategy. I am thinking positive and looking at my future options. If anyone has been where I am at now would appreciate your insights. 

Comment (0)

PSA doubling in 6 months

Sep 10 2016

My health has been pretty good since my last report. My PSA stayed 0.1 for the last 2 checks or one year-9-2015 and 3-2016. However the last blood study my PSA went up to 0.3 so doubled. Testosterone was 29 so hormone therapy-Lupron and casodex are working. We discussed the concern and are going forward with same protocol Lupron and Casodex and evaluate my PSA in 3 months to see if it is still ...

Comment (0) | Read More...

PSA went from 0.5 to 1.2 in 6 months. What to do?

Jul 18 2015

We chose to do the 6 month lupron injection and Casodex 50 mg daily and evaluate in 3 months. www.nlm.nih.gov/.../a697047.html We discussed re-evaluating the 2 lymph nodes with CT scans/ MRI however chose to wait with small PSA increase. We know this will be done down the road anyway. We also discussed Provenge and prostvac  immunizations and chose to wait f...

Comment (0) | Read More...

Dec. 2, 2014 INTERMITTENT THERAPY DID NOT WORK FOR ME

Dec 03 2014

I just got another injection to lower my PSA however this time it was an antagonist not an agonist(Lupron). Due to my PSA going up to 3.4 from 0.1 in 3 months My urologist did not want the flare from agonists like Lupron so we got antagonist drug for a month and if lowered we will go back to 6 months Lupron. I chose to do intermittent therapy 3 months ago and found out it will be best to contin...

Oct 03 2013

I had my tests repeated for the first time since 11-2012 to see the effects of Lupron for my reoccurrence of PCA. The PSA is down to 0.06 from 15.0(11-2012) and my 2 lymph nodes are no longer swollen and are normal and my bones show no metastasis. All in all I feel great with the results and will be retested in 6 months again for the PSA as I just got another 6 month Lupron shot. I will continu...

Lupron injection

Dec 08 2012

I am waiting for the symptoms from the 3 month hormone injection-as of yet nothing. I am less than 2weeks in so heard it takes 3weeks before flashes and tired. I changed my meal plans to no dairy,breads,alcohol,simple sugars and exercising daily by 30-45 minutes on treadmill and 10 minutes weight training. I am taking vitamin c, shiitake mushrooms and other standard process vitamins and mineral...