I posted recently that my husband's bone scans were clear.
We were told at our appointment when we got Prostate Cancer confirmed that as long as the bone scans were clear, surgery or radiotherapy with hormone would be options. We asked for time to discuss these options and when we were told the scan was clear, my husband rang his clinical nurse and indicated that he was happy to go down the surgery road (their preferred treatment route) and could they set the referral up for the regional hospital. He was told that he was up for another discussion at Monday's (yesterday) MDT meeting and he would tell them his preference.
Hubby got a phone call to say, that they were no longer recommending surgery as they weren't certain that they could get all the cancer, so we're recommending radiotherapy and hormone therapy.
We are now totally confused as they have stressed there is no spread to the bones and both tumours are contained.
Husband never asked for any explanation to why things had changed and has anything changed. We did ring back, but got the clinical nurses answerphone and said we were totally confused and needed some clearer information, so could we have an urgent meeting. So far, no reply.
Has anyone had a similar experience as we really don't see what could have changed in two weeks when the only test he has had, has come back clear, or did they misinform us two weeks ago.
Just lost and floundering at the moment and don't know where else we can turn to.
Sans.
