age starting hormone therapy

FormerMember
FormerMember
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I am 78 and starting hormone therapy with Bicalutamide. Are there any side effects that particularly affect people of my age I should look out for

  • FormerMember
    FormerMember

    Hi Oldtimer,

    I was only on bicalutamide to prevent tumour flare so just for 1 month.  My brother is on it permanently and been taking it for 3 years and he's a young sprog aged 65.  He's developed man boobs (GP can prescribe another drug to counteract it if it becomes a problem).  He had some fatigue to start with but he's kept very active playing golf which seems to have helped.  You may suffer from tiredness and fatigue though - most hormone treatments cause this.  He has had hot flushes - bit like menopausal women suffer - but he has learned to live with them.  You may find you get up in the night for a pee more often so don't have a drink after 8pm which should help. If unlucky you may get pain in the pelvic region and swelling in your arms and hands.

    The problem is some men don't suffer with much at all while others can get the whole lot.  Everyone is different so its really a case of wait and see.  But do keep active as much as possible as exercise really does help

    There's a list here:  https://www.cancerresearchuk.org/about-cancer/cancer-in-general/treatment/cancer-drugs/drugs/bicalutamide/side-effects

  • hi oldtimer 

    when i got my diagnosis , i went on bicalutamide then 2weeks in i had my first hormone injection ( zoladex i think ).

    only took the bicalutamide for a month and now on 3 monthly injections for life it looks like :-(

    side effects so far hot flushes ! no real fatigue atm , i'm a self employed gardener so very active and its heavy work .

    plus i'm on 3 weekly sessions of chemo as well so its a bit difficult to pin down what side effects to blame on ht or chemo ?

    everyone reacts differently , my mantra since this started is positive mental attitude and eat healthy and keep active .

    gd luck  paul

  • hi sd1 

    whats the drug called for the moob problem please 

  • Hi oldtimer,

    I had Bicalutamide for just a month (starting early in October 2018) and started with Prostap just three days later. So I was having both for over three weeks. I didn't have any side effects early on but did begin to get hot flushes after about six weeks. I take Evening Primrose Oil and Sage Leaf capsules (both available from Holland & Barrett) twice a day and that has knocked the hot flushes on the head.

    I was very fit before starting the hormone treatment so started from a good baseline. However I did find I was quite tired during the last two weeks of radiotherapy. I am now 4 weeks post RT and am almost back to normal.

    Many younger men suffer from erectile dysfunction when on hormone treatment, but as I already had that before starting the treatment it didn't matter to me. At 78 it may not be a problem for you either!

    Good luck with your treatment.

    Yesterday is history, tomorrow is a mystery and today is a gift.
    Seamus
    (See my profile for more)
  • FormerMember
    FormerMember in reply to FormerMember

    I have not had hot flushes yet but am prepared with Wet Wipes, and from Amazon a hand held fan which mists and some hot/cold pads.

    I do get pelvic pain but have had that sometimes before diagnosis. I find sometimes that if in need of using my bowels I get a discomfort as lower back pain but often  eases after defecation.  Constipation can cause lower back pain. GP has prescribed Docusate for Constipation following taking Codeine and it is a sort of Laxative but  is classified as a Stool Softener as  stool  absorbs water and softens it. .

  • Try taking a sachet of Fybogel after breakfast. That should help with the constipation. It's about £6 for a pack of 30 from any high-street chemist or online from Amazon.

    You should also eat wholemeal bread and plenty of high-fibre foods.

    Yesterday is history, tomorrow is a mystery and today is a gift.
    Seamus
    (See my profile for more)
  • FormerMember
    FormerMember in reply to FormerMember

    Hi

    I have been getting this since chemo and radiotherapy. Not got to the bottom of it if you will pardon the pun .Thin Th I have found out that helps me that may help you.

    My breakfast consists of 40mg-50mg of portage oats cooked in water. Two dried prunes. A tablespoon of pumpkin seeds. One or two tablespoons of honey . If like now I am away from home toast butter jam

     I also drink full fat milk in my tea. I only get the pain just as you say when my stool is soft. When it's firm and hard I do not get the pain. Breakfast is important. I avoid too much chocolate although I occasionally drink a chocolate drink called Milo with no bad effects, so that may be a red herring. I also have found things are worse in the cold. I am in malaMala at the moment and do not have the problem. If I ever find out what my problem is I will let you know. I do not use laxitives. I can get the pain on an empty stomach. Not having breakfast or skipping meals I have found is not the answer.

    If I ever find out what causes this I will let you know.