Husband has advanced prostrate cancer

Hello valletta66 

A warm welcome to the group, although I am so sorry to find you joining us.

I am so sorry to read your post - it sounds like your husbands consultant needs to work on his customer care skills. So

* Other possible treatments could be enzalutamide, abiraterone, other chemotherapy drugs, olaparib or even radium-223.

* If you add your husband's journey to date to his profile, it would help us to help you as we don't know his diagnosis and treatment he's already had. To do this on your home page click on the green chair - top right, then profile, the edit. once you have written something don't forget to save it. You can view a profile by clicking on a name or avatar.

* If you are unhappy with the consultant (clearly you are) you can ask for a "Second Opinion". On the NHs you need to do this through your GP. The other alternative is to pay for one privately.

I hope the above helps.

Best wishes - Brian.

Thanks Brian - i joined this group to read other people's journey's/issues and to 'vent' a little as i feel so hopeless.  The only reason we got to meet the consultant was because I complained to PALS (the patient liaison group at Southend/Basildon hospital).  We've never been given a 'plan' - just told to have chemo which ended last August and after that a blood test every 6-8 weeks.  Our local hospice do the outpatient care and have been amazing with pain relief and chasing the consultant! I will try and complete the profile for him. Thank you.

Hello valletta66 

We are here to listen, share what we know and to help where we can.

We are all in the same club and that gives us a "bond" with other group members.

You vent as much as you like - and please do ask questions, nothing is too trivial and we are all happy to help.

Best wishes - Brian.

Hi Valletta, sounds like your husband has not had a good experience at all. My partner has an excellent team and really helps to feel re assured. If I was you I will request all his records and approach another hospital / doctor for a second opinion. Christie's in Manchester or Marsden in London or Adenbrooks in Cambridge are great. You can pay privately to avoid waiting and it's not too expensive approx £ 200-300. Take care

Thank you - treatment seems a postcode lottery; my head is all over the place right now.  We'll talk it over.  Really appreciate the support from everyone on these pages - it makes me feel less alone.