Advice needed

Hello cancerwife62 

Welcome to the group although I am so sorry to find you joining us.

The normal pathway is - urology - oncology and then back to your GP to administer any Prescribed Medication such as Hormone Therapy. In my case my hospital sends a "shared agreement" to the GP asking him to deal with my regular HT injections. (My GP has put a copy of the "shared agreement" on my NHS App)

Does this answer your question, or is it something more specific?

Best wishes - Brian.

You say your hubby is diagnosed. What is the diagnosis?

The specialist nurse, that will be given to you, may be best route to find out what’s what.

The GP is not going to help with the cancer. They deal with the rest of the body.

This is a couples disease and you will be as affected as he is, as you’re about to find out.

Keep asking questions here, we can help.

There is a profile page (press the green button top left of this and all your pages) where you can store your history of PC diagnosis and treatments. It helps the forum to diagnose the issues you ask about.

We are not doctors! But we have been there and done that.

Take care

Welcome, but sorry you find yourselves here. I suspect Hospital v. GP a common problem. Certainly keep as much as possible in hands of specialists  -  GPs are unable to prescribe some of the more uncommon (read expensive) drugs. They even take it on themselves to alter the shared agreement (which mine doesn't even log on patient record) for the HT injection which they do (reluctantly) administer from indefinitely to for 12 months!

The key info is what treatment already had, what is ongoing.

Good luck, Dave.

Hello cancerwife62,

I'm not sure if the different countries of the UK do things differently, as many health boards seem to have their own way of doing things. 

In my case (England), after receiving my diagnosis the consultant sent a letter to my GP with a copy to me detailing the test results and what the treatment pathway was to be.  Part of the letter had an overall summary of relevant information with a section entitled 'GP actions required'' in which they kindly asked the GP to continue with the HT & administer the 3 monthly injections - this then detailed how long the treatments were to be for.  I'm assuming that this letter is the shared agreement Millibob (Brian) refers to.  As well as receiving my own copy, the letter appeared in my NHS app.  I did check with the GP a few weeks before each appointment that everything was in place to avoid any hiccups & everything ran very smoothly.  The RT side of treatment was all dealt with by the hospital.

You haven't said how long ago your husband was diagnosed with PC or if you have received any letter about it but if not, I would suggest chasing up the hospital team on a number you will hopefully have been given.

Best Wishes

Brian

Update:

Thank you everyone for all your advice.

Spoke to a fabulous charge nurse in the Urology department on Monday and we went to pick up his prescription yesterday

I can now breathe again

Hello cancerwife62 

That's great news you have got things sorted for now. Is he on regular pills or injections and if it's the latter who is administering them, urology (they normally do the first one then the GP) or the GP.

Prescriptions for HT treatment are usually 1, 3 or 6 monthly so you need to be pro-active and be ready to chase the next prescription and appointment up.

Best wishes - Brian.