Good news and some careful thinking.

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I had a discussion with my Oncology Team last evening.

It was good news, so I thought I would share it.

Six months on from the last test my PSA is still undetectable. 

The side effects of the Zoladex are still the same - pronounced but workable, once I had adjusted to them. Erectile workings and libido are also undetectable, the fatigue is within bounds, and the hot sweats are hot and sweaty. However, I am coping with them.

Visits to the bathroom have fallen to one per night, from a peak of 5 - 7.

The consultant's minion said that all this indicated that the combination of radiotherapy and hormone therapy are doing the job.

Plan is to continue the hormone therapy until a full 3 years have passed since the original injection - so around April 2027.

Another review with new PSA results in 6 months.

If that works out we keep that until the 5 year mark and then discharge me back to the GP, unless something else changes.

So, that strikes me as pretty good news, and an early indication that the treatment is doing what it was supposed to.

I have been wondering these last couple of weeks why I am so determined to continue, even though it could still go wrong, and something is going to get me in the end.

Thinking back I have an example which helped the way I was thinking (I was having a "why me" moment).

My granddaughter, 15 years old, really enjoys drama. I am glad about that, because she is really good on stage. I compare the much younger child, who would hide behind my legs, with the teenager who will get up on a stage and sing, alone, in front of all her peers, their parents AND teachers, and wonder where she got the confidence to do that.

On 31st March I went to watch this year's school production. It was a production of "Oliver". My granddaughter secured the role of the Artful Dodger. I thought she was brilliant. So good, in fact that I had to ask teacher, other parents, and some of her friends whether my conclusion was just an old man with a surfeit of pride, or whether she was actually as good as I thought she was. The worst comment was that she was "very good".

She sang, she danced, she spoke, and she picked pockets. Or two. At the end of the show, when she finally surfaced from the dressing room, I got a hug. She cried, I nearly did.

That's why I am continuing with all this. I want as many of those moments as I can get.

  • Hello Steve ( 

    Brilliant post - thank you.

    We all have those "why me" moments and we all wonder at the end of the day "is it all worth it?". For me the answer is yes it is.

    I want as many of those moments as I can get.

    I have 4 grand children - I love those moments they are priceless. We had one on holiday last week. My wife had made a coffee and walnut cake and Finley one of the grand children asks for a "piece of coffee and grandad's prostate cake please" - out came the hanky to mop up my tears.

    Your continuing documentation of your journey can only help others to realise life goes on. Thank you also for your continuing support around the community - it's very much appreciated.

    Kind regards - Brian.

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  • Fantastic, keep the positivity and the love of life.

  • Hello Steve

    i can reassure you that the ‘why am i so determined to continue’ thoughts come to all of us ( well, certainly me!) with or without a cancer ‘issue’. We know we are past our peak from a health perspective when we reach our later years. Our future demise is inevitable and gets nearer! It’s a fact of life!

    However, ( and it’s a big ‘however’j we have so many blessings to make it worthwhile continuing! We have our families, our friends, our past times and, even, work (possibly?) that brings us the joys you describe. I suspect many of us, like you, get so much from our grandchildren! These little ( and for us now, not so little for some grandchildren) bring so much love, happiness, pride etc into our lives! 

    My friends and neighbours bring different but positive emotions too!

    But , far beyond this, my husband, my soulmate of over 59 years, my sounding board, my prop, my supporter, my best friend - my everything is still here with me. 4 years ago we were just about to learn we had a big cancer problem on our hands. That totally derailed us! But, we got through the RT and HT and have emerged older and wiser and know we should appreciate every morning we wake up in the same bed, everyday we go about the ups and downs of our daily lives and that goodnight kiss when we settle down to sleep!

    long may you live to watch your ‘Artful Dodger’ grow into a beautiful young woman and, eventually, let you meet your great grandchildren!

  • Wonderful post Steve. I was diagnosed with metastatic 3 weeks ago, I’ve felt sorry for myself most of that time, angry and depressed but posts like yours and others on here have helped me realize that it’s not just about me, it’s about my wife, children, grandchildren, family, friends and my loyal little Cockapoo Alfie. We do it for them and I’ll do everything I can to make sure I’m around for many years to come. All the best. Graham. 

  • I've just read through this thread and had to get the Hanky out half way through.

    My wife just walked in and wondered what on earth was going on.

    Best wishes to all!

    Made in 1956. Tested to destruction.

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