Treatment Stress?

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Recurrence, with no attempt at curative, diagnosis c.7mths ago hasn't caused me much "stress". The decapeptyl element of HT is a different matter!

First 12-weekly injection at GPs was OK, as agreed between CNS and Surgery I turned up and it was administered. A date was set for next and I was assured that all I had to do was be there.

This was confirmed when I phoned to check time. However quite by chance when ordering another prescription I was puzzled by decapeptyl suddenly appearing on MY request list. Nearly half a day of being in a queue of >30 on phone and an exchange of emails I was told that they would source and collect. This was rescinded by a text msg  -  prescription cannot be sent electronically so I had to collect, difficult, and find a pharmacy between 8 April and due injection date of Mon 13 April. No chance.

So I phone again. "No, we never sort out prescriptions...." I pointed out that they did 12 weeks ago and demanded to speak with Practice Mgr. After another lengthy wait I was told that "spoken with my supervisor......yes, we will source....all you have to do is turn up..."

I have no confidence that I will receive the injection/treatment on the due date. If not, I am inclined to quit treatment, the hassle and, yes, stress, is simply not worth the gain.

How was I supposed to know that simply added to my repeat scripts list? Or that I can request it,? Or that an item that cannot  be sent electronically to pharmacy, only paper? 

GP failed completely to act on my raised PSA levels. And now is doing its best to prevent my getting treatment on time. 

Rant over. 

Good luck, Dave 

  • Hey, this space is yours to rant in.

    You’re not going to be chastised here we are here to listen and possibly help you.

    The stress we are all under is immense and sometimes crushes one. So don’t worry about saying it how it is.

    You can ask your specialist nurse (if you have one) to comment on you’re situation as a go between but you need to talk to someone in the clinical loop.

    Good luck

  • Hello Dave ( )

    I can understand why you need to let off steam.

    So HT is on a list of drugs that need to be treated with caution. Your oncology department will have issued a “shared agreement” to your G P practice to give you the HT injections.

    Details of your medication should be on your NHS appt with a copy of the shared agreement in your “documents”.

    Personally I would be dealing directly with the practice manager - if that isn’t working you need to take out a formal complaint.. 

    IF the GP practice was in the wrong with your original diagnosis - make a complaint. If you don’t other men may suffer like you. It’s up to us to route out the bad guys- otherwise more people will suffer.

    Best wishes - Brian.

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