RT side effects

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RT finished on March 9th, but the bladder spasms are as severe as ever though less frequent. They're at their worst just before I have a bowel movement, which makes sense to me. I'm still taking 8 x 30mg co-codamol a day (and I have to take them on time). I take buscopan if the spasms are really bad, and I have cold peppermint tea if I need it during the night. Has anyone found anything else that helps? I realise that my body doesn't like the catheter - it spat it out a couple of weeks ago...

My secondary symptoms are concerning me more. I've spent so long in bed just to have a comfortable position, I have swollen feet and knees. Going to the loo is literally agony. Has this happened to anyone here and, if so, how did you deal with it?

I'd value any advice because this is starting to affect my relationship and my mental health.

Thanks,
Chris

  • Have you considered intermittent self catheterisation (ISC) as an alternative to the in dwelling type. I would discuss this with your radiotherapy team. I posted some information about this recently.

    Sounds like you are having an abnormally rough time. I hope things improve for you soon.

    Best wishes Rob (Sandberg)

  • Hello ,

    I'm sorry to hear of the ongoing problems you're experiencing, it sounds very debilitating indeed.

    I'm afraid (or maybe glad in view of your description!) that I didn't experience this, but just wonder if your medical team can come up with something better to ease this for you?

    I do hope it gets better very soon.

    Made in 1956. Tested to destruction.

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  • Hi Rob, and thank you. I have read about ISC and I'm interested. My TWOC is due April 30th so maybe I should raise it before then.

    Thanks,

    Chris

  • Hi Excavator, I left a voicemail for my Macmillan key worker this morning.

    Let's see if anything comes of it.

    Chris