RT side effects

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RT finished on March 9th, but the bladder spasms are as severe as ever though less frequent. They're at their worst just before I have a bowel movement, which makes sense to me. I'm still taking 8 x 30mg co-codamol a day (and I have to take them on time). I take buscopan if the spasms are really bad, and I have cold peppermint tea if I need it during the night. Has anyone found anything else that helps? I realise that my body doesn't like the catheter - it spat it out a couple of weeks ago...

My secondary symptoms are concerning me more. I've spent so long in bed just to have a comfortable position, I have swollen feet and knees. Going to the loo is literally agony. Has this happened to anyone here and, if so, how did you deal with it?

I'd value any advice because this is starting to affect my relationship and my mental health.

Thanks,
Chris

  • Have you considered intermittent self catheterisation (ISC) as an alternative to the in dwelling type. I would discuss this with your radiotherapy team. I posted some information about this recently.

    Sounds like you are having an abnormally rough time. I hope things improve for you soon.

    Best wishes Rob (Sandberg)

  • Hello ,

    I'm sorry to hear of the ongoing problems you're experiencing, it sounds very debilitating indeed.

    I'm afraid (or maybe glad in view of your description!) that I didn't experience this, but just wonder if your medical team can come up with something better to ease this for you?

    I do hope it gets better very soon.

    Made in 1956. Tested to destruction.

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  • Hi Rob, and thank you. I have read about ISC and I'm interested. My TWOC is due April 30th so maybe I should raise it before then.

    Thanks,

    Chris

  • Hi Excavator, I left a voicemail for my Macmillan key worker this morning.

    Let's see if anything comes of it.

    Chris

  • Here is my experience of training for ISC

    Intermittent vs Indwelling Catheters

    Having just received training on how to self-catheterize I thought I'd share my experience and pass on the benefits of ISC (Intermittent Self Catheterization) vs indwelling catheters.

    I received training on ISC at my local hospital urology department and the whole process lasted about an hour. I must admit to being a bit anxious before the appointment and the thought of introducing tubes into sensitive areas of the body was a bit daunting.

    However, a lovely nurse put me at ease and I completed the appointment feeling confident I could complete the procedure safely and independently.

    During the training the nurse will explain the anatomy of the urinary system, show you the different types of catheter, explain the process of ISC and finally you will try the procedure for yourself. Important information on hygiene and risks is also explained.

    The modern hydrophylic catheters (activated by breaking a small capsule of saline inside the catheter packaging) are amazing and very comfortable and easy to use.

    Intermittent self-catheterisation has a number of advantages over the indwelling type.

    It has a lower infection rate (UTI)

    You can live a much more normal life without having any permanent appliance in or on your body

    You can still have sexual intercourse

    I received the training as I occasionally have trouble emptying my bladder and ISC means I can avoid the anxiety and discomfort associated with these symptoms.

     Sandberg (Rob)

  • Hello Chris ( 

    I had an indwelling catheter for over 10 months - no issues - no UTI's - I have also had a TURP operation too!

    Perhaps we need a chat - over a coffee. I notice you are under The Christie - so am I so I assume you are local to me (I am in Oldham). Drop me a personal message (my message box is open) and if you wish to chew the fat and have an open conversation over a brew  - I am quite happy to see what I can do for you.

    Kind regards - Brian.

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  • Hi Brian, I'm near Sale, so not a million miles from you. Mobility has become an issue but I'd love to have a brew with you. I'll message you direct as soon as I can think of some dates.

    Very best regards,

    Chris

  • Hello Chris ( 

    No problem. I am back from my jollies in Scotland so drop me a line when you have some time and we can put the world to rights.

    Kind regards - Brian.

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