MDT & results

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Hello everyone, 

hubby had a PSA of 16, had MRI & finally a biopsy 6 weeks ago. The results are back (we haven’t been told what they are) but MRI shows a 1.8cm lesion extending into seminal vessel and neuro vascular bundle. 
the MDT is this Thursday, does anyone know how long after that they will on touch? 
also anyone amy similar experience in terms of treatment ? 
we know it’s cancer, but this has been an exhausting long 3 months given too much time to think…., with Christmas & everything else I am at my wits end with not having answers 

thank you so much for reading 

  • Hi Bear and welcome 

    Sorry about the news that broken through into the vesicles.

    All I would say is that sooner HT can start the better to stop it in its tracks and then Radiotherapy can start sometime next year.

    I would try and push for a meeting if poss before Christmas 

    to find out about Gleeson and push for HT to start.

    I should add that's just my opinion doesn't mean it's correct.

    Anyway best wishes and I hope things move forward for you

    Steve 

  • Steve thank you so much for the reply I really do appreciate it! 

    this is a relief to hear as I have imagined they would do surgery and remove the prostrate 

    there’s little comfort in the silence….. appalled at wait times and how this rolls out 

    I absolutely will be ensuring we have some answers asap following the MDT next week this is just beyond cruel as PSA was identified at the end of August 

    can you explain what it means that it’s extended into vessels and likely outcomes ? 

    thank you 

  • Seminal vesicles I think just on top of the prostate gland but it is still potentially curable.

    They could offer surgery but I feel that once extended to vesicles and/or broken through the gland edge then RT a better bet.

    Yes I do feel that when just broken through/vesicles they should sort something out quickly to stop any further spread.

    Steve 

  • Hello  

    A warm welcome to the Macmillan Online Community although I am so sorry to find you joining us,

    * I would anticipate your results and a treatment plan will follow the week after the MDT meeting. It should be a face to face appointment but some are now conducted by telephone.

    * If the cancer is in the seminal vesicles then this would normally rule out surgery. If it's in the neurovascular nerve bundle you really want to keep that as that's used to give you an erection - you don't want that whipping out!! Innocent.

    * You may have some questions for the oncology team after the MDT meeting so as we are all different I will leave you with some reading material:

    Staging-and-grading-of-prostate-cancer.

    and

    Questions-to-ask-your-healthcare-team.

    It's possible that before any treatment plan is given you may be required to have a bone scan to check for any potential spread.

    Please do come back to us with any questions.

    Best wishes - Brian.

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  • Brian thank you so very much! This is really helpful 

  • Brian they did a CT endoscopy & colonoscopy all clear as MRI picked up severe degenerative changes to pelvis bit clearly said no evidence of metastasis- again I’ve no idea what that means 

    the links are super helpful as I had no idea of grading etc so thank you for that 

  • Hello  

    No evidence of metastasis - means it shows the cancer hasn't spread there.

    In a nutshell (no pun intended) the more confined to the prostate and surrounding areas - the easier it is to treat and usually staged T1 to T3., and more often than not you end up on a "curative pathway". Once it gets into your bones you join the T4 club and although it's treatable - it's not curable.

    I know it's all new but keep asking and we will keep replying.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

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  • Hi  , just to agree with the others, my reading of this is that surgery isn’t an option (and I am not a big fan of it anyway). Hormone Therapy (HT) starves any prostate cancer (PCa) wherever it is in the body, so is a much better initial treatment.  Any tumour will be halted in its tracks and this gives you time to relax.  Other treatments, Radiotherapy (RT) or Chemotherapy may be offered further down the line.  Remember that at this diagnosis PCa is very curable, so just concentrate on Christmas.  As your journey continues please ask any questions.

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.