Advanced prostate cancer

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Hi, my husband has advanced prostate cancer with metastatic spinal cord compression. He also has lymphoedema which is effecting his legs. He had a review with his consultant on Tuesday. His PSA has raised from 1.5 to 2.7. The consultant said he isn’t concerned and to carry on with the hormone treatment he is currently receiving. The consultant will review again in three months time. Does anyone know if we should be concerned or not. My husband’s physiotherapist wants him to do an intensive course of inpatient physio to see if he can stand up and maybe walk albeit with aids to support him. 
My husband hasn’t been able to stand for seven months, the spinal cord compression has left him incontinent and unable to weight bear on his legs. 
he is hopeful he will one day walk again. His consultant says his progress with the physiotherapist is remarkable. I really want him to achieve his goal of being able to walk again. Has anyone ever experienced anything similar? It will crush him if he can’t stand or walk. 

  • Hello  

    Thank you for your updated post - I am so sorry to read of your situation with your husband. I can't answer your question regarding walking again, but can reassure you the Consultant is correct in telling you not to worry about the slight rise in PSA. 

    I wish him well with his course with the physio team - please do contact our Support Line if you need any extra support on 0808 808 00 00 (8am to 8pm 7 days a week).

    Best wishes - Brian.

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  • Although I do not have your diagnosis, and have no cancer affecting bones, I have some considerable experience with back problems.

    I was bed bound for a month in March this year due to spinal stenosis. Since then, with the help of a physio and a chiro, I have been getting better.

    Two contributions to your thoughts

    1. Physio can be really effective and it seems your husband has been making progress. Keep on going and there will be improvement. Note that the improvement will be grinding and excruciatingly slow, so do not be discouraged.
    2. Do not be afraid to meet the pain halfway. In August I gave in to my family's strictures and acquired a rollator, a walker. I thought it was giving in. They thought I was an idiot. They were right. Using the walker I have increased my range of walking enormously. Even better, the motion in that has increased my mobility without it. I can go to shops and stuff, and walk short distances. Take every chance to get out. Borrow stuff from the Red Cross if necessary. Everly single thing that improves confidence will help your husband.

    I have found that the progress is not noticeable, day to day, but if you look back 2 or 3 weeks there will be differences.

    One other thing that I am not qualified to say, but you might want to check out.

    With your husband's symptoms, and purely on the basis of the back problem only, I would have expected surgery to be considered. It might ne an idea to check that out.

    I wish you very, very well.

    Steve

    Changed, but not diminished.
  • Thank you so much for your encouraging words. I sincerely hope you continue to do well and enjoy getting out and about. My husband had a long way to go and lots of frustration along the way- I imagine. He has cancer in his axle skeleton and in his femur of his left leg as well as the prostate and spinal cord. Walking will be a massive challenge for him but he wants to give it a go and I am backing him all the way. Sending hugs and love to you. 

  • Hi Millibob, 

    thank you for your reassuring message. I really appreciate your help and support. xx