Hi,
(see bio, living with advanced but under control)
I'm a long way down the line, on this (adventure and have been lucky, In my opinion.) ,considering the initial informed opinion.
I'm currently on remote monitoring ( 6 monthly blood test and reviewed by nurses ,informed by letter.) and off everything except the monthly Degralix injection,
My numbers (Psa) are still incredibly low.
A recent, minute rise, had me wondering at what level, would be the deciding line to restart the more hard hitting drugs again, it would have been miraculous, if the numbers remained the same heading towards 16 months from stopping Enzlutamide.
The figures are still incredibly low.
I am not neither worried or concerned, currently.
Just wondering.
TG
Hello tillysghost
That's a good question, but the more important thing is you are doing well under the circumstances and life looks to be good.
The normal rules for intervention are:
* 3 consecutive rises in PSA or
* A rise of +2 whole points.
However every oncology department looks at things in a different light. I had rising PSA's of 1.63 and then 3.86 we agreed to do nothing until I had reached 10 - my next one was 27.5!!
I am not neither worried or concerned, currently.
and that's just how i feel as my team are looking after me. I feel you have the right attitude as worry and anxiety are not good.
Best wishes - Brian.
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