Hi,
(see bio, living with advanced but under control)
I'm a long way down the line, on this (adventure and have been lucky, In my opinion.) ,considering the initial informed opinion.
I'm currently on remote monitoring ( 6 monthly blood test and reviewed by nurses ,informed by letter.) and off everything except the monthly Degralix injection,
My numbers (Psa) are still incredibly low.
A recent, minute rise, had me wondering at what level, would be the deciding line to restart the more hard hitting drugs again, it would have been miraculous, if the numbers remained the same heading towards 16 months from stopping Enzlutamide.
The figures are still incredibly low.
I am not neither worried or concerned, currently.
Just wondering.
TG
Hello tillysghost
That's a good question, but the more important thing is you are doing well under the circumstances and life looks to be good.
The normal rules for intervention are:
* 3 consecutive rises in PSA or
* A rise of +2 whole points.
However every oncology department looks at things in a different light. I had rising PSA's of 1.63 and then 3.86 we agreed to do nothing until I had reached 10 - my next one was 27.5!!
I am not neither worried or concerned, currently.
and that's just how i feel as my team are looking after me. I feel you have the right attitude as worry and anxiety are not good.
Best wishes - Brian.

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Hi tillysghost that is quite some journey and should give encouragement and inspiration to any newly diagnosed Advanced PCa folk. Staying positive is such a big part of this journey.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
Hi David,
my ride nowhere near as bumpy as yours.
Worked through most of my chemo, taking two days off +wkend after each of the six courses and six blasts of the old radio one treatment.
Worked whilst on Enzlutamide , when it was halted due to the heart issue the world was a brighter place.
Retired just before heart issue, to spend more time with family. now wonder where the day has gone, happily.
Like you loss of sensation in toes is the strange after effect of the professional poisoners.
Have a few niggles but staying the upward side of the slope helps.
BOL
TG
Hi Brian,
I thought of messaging you directly because, I thought it would be you answering.
Thank you
Well I have had two minuscule rises ( but no where near your first figure, as stated earlier, my numbers are incredibly low.)
But it's nice, to have an idea when the nurses are going to say we are booking you in for a chat.
Thanks again, your work is greatly appreciated by many.
TG
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