Self-administered Decapeptyl injection?

Hello ansteynomad 

Wow - that's the first time I have come across that one.

Decapeptyl is not an easy injection, first off it needs to be mixed correctly and then it's an inter-muscle injection into the backside. I would say it's a none starter and you need to be registering a complaint with the practice manager.

"Edit"

Here's the patient information sheet:

Decapeptyl-sr-triptorelin-information-from-ipsen-uk/

This clearly says "can't be administered by the patient".

Best wishes - Brian.

Hi ansteynomad,

have they actually said that they want him to self-inject ?

It may be that your surgery is thinking laterally and somewhat cleverly (unlike mine !!!!). GP surgeries will only keep a limited number of drugs on the shelf - if they have been instructed to give a shot that they don't keep, the quickest way to get it is to give the patient a prescription to get it from Boots (other pharmacies are available). The patient then takes it to the GP nurse for mixing and administration.

My injections have all been nurse injected as others say must be the case .

I do however wonder how , if surgery , has only just been instructed this injection has been authorised .

Following my post surgery review ( my ‘journey ‘ can be found in my profile ) I asked why HT to slow / stop spread was not given upon diagnosis and choice of RAPR as it is if RT is the chosen route .I  was told that HT treatment whilst waiting for the procedure was not approved but that it was under review 

I said that I could not understand the logic behind that but got no further explanation.

Have NICE guidelines changed or is this particular to my  Trust   

Thanks in anticipation .

Hi Sorry to add my penny worth but ring the oncologists or get in touch with your nurse they might be able to arrange for you to get it done there, it should be done every 12 weeks.

Sheena 

Hello Magpie29 

I trust you are well. 

A link to the NICE guideline for dealing with Prostate Cancer is below - these were last revised in December 2021 and are only guidelines:

NICE Guidelines Prostate Cancer.

I think 1.3.51 to 1.3.59 may well be of particular interest to you.

Kind Regards - Brian.

Thanks Brian 

Yes , well thanks . Just had a a great week in Italy , our first get away abroad following RAPR . 

PSA down to <0.01 . Side effects limited to some hot flushes and a bit of fatigue . Managed 16 holes of golf  this morning and able to enjoy a few beers without difficulty.

I’ve read those paras . They refer to the post treatment period . My question ( maybe I didn’t make it clear ) referred to the period pre treatment ( RT or RAPR ) and after treatment choice 

regards 

Magpie ( an unhappy one after yesterdays car crash  performance ) 

Hello Magpie29 

Nice that you've managed to get away - and the golf is OK - are you after one of those low handicap things? (I don't mind the 19th hole!!).

Ah the post treatment period - once you start reading the guidelines from the start (and the full guidelines are in in my link) you wonder just why you haven't been told everything - what about ED, Have you spoken to my partner , did you tell me there would be side effects... it opens a mine field - and the answer you get is "just guidelines"

Best wishes - Brian.

I’m never going to get a low handicap at my stage of life . It’s more the company , exercise and craic with my mates that it’s about - and the 19th of course 

there is nothing I can see in the guidelines about pre treatment HT protocols . I will ask again at my next appointment whenever that is 

it strikes me that the information regarding the outcomes  of the RT option may now be out of date - and thus decisions made on treatment no longer best informed . I read a lot about how RT procedures have  improved a lot over recent years yet there is reference to studies done pre 2020 . 

cheers 

Magpie 

That's seems to be an old practice. 

NICE guidelines are to have HT therapy before and after RT.

Of course this is up to individual circumstances but it is certainly a question to ask, and to make sure that you get an answer. 

Hello Magpie29 

In my "real job" I deal with a golf club (I don't play) and they keep inviting me and my staff up for a round or two - they even have bats they lend out, but we keep declining as none of us play and it would be a total sh*t show!!

The NICE guidelines need looking at. Last updated December 2021 which means reviewed in 2020/2021. Things have moved on but I think many urologists/oncologists are stuck in their ways.

On a personal note I have been a "lucky boy" - my urology consultant was proactive and put me on HT within 3 days of meeting me (hospital in patient) and my oncology consultant is both approachable ad proactive.

As we say at Boundary Park - Keep the Faith (although MK Dons away in round 2 of the FA Cup isn't what I wanted. Things could be better for you too 13th in the league.

Kind Regards - Brian.