Diagnosis results

Hi Crown green2e787e thanks for providing your stats.  Quite interesting and you will probably be offered Active Surveillance (AS), Surgery (RP) or Radiotherapy (RT).  Your overall scores are low but as you say, quite a high number of positive cores but at low grade so AS may not be offered.  We have some on here who are not in favour of AS and with your scores I would agree.  Please ask any questions.

That looks ok CG

Easily treatable and potentially very likely curable.

Start thinking about treatment options, surgery or Radiotherapy, check on side effects of both

Good luck

Steve 

Hi Crown green2e787e , glad you are here, even though it probably seems to you that you don't want to be. This is a good place to get ideas from people who have been through the mill.

Your various scores suggest that you have ALL the options, which is both a blessing and a curse. Your doctors are likely to lay it all out and then give you the choice.

Read as much as you can on MacMillan's information pages, and those of Prostate Cancer UK and Cancer Research UK. Gather the information, and then make a list of the side effects that you think may most concern you for each treatment.

It's not quite as easy as deciding that the treatment with the least side effects is the one, because they are fickle things, and you may be put off by something that will never affect you.

There are people on here who have experienced nearly every available side effect, so you can get a clear idea about how they may affect you.

Your team will suggest plans to you, and the combination of all of these things will lead you to a clear decision.

Hi David2017,  I have been recommended AS after the mdt but a letter also says I would be suitable for all options. I feel that I need to discuss it in more detail with the oncologist so have asked for an appointment. 

If it is not AS my thoughts at this point are towards radiotherapy.

Hoping a face to face appointment will give me the reassurance I need. Thanks

Hi mstev2  thanks for the reply, I do seem to be suitable for all options from conversations so far.  Initially I thought AS but after talking about it to my wife & family I have a lot more questions so asked for a meeting with the oncologist to discuss this and other options in more detail. Its all happened quite quickly so Im reading a little every day to gain more knowledge.  I have a friend who went down the RT route and has had good outcomes so I am considering that if I go further than AS. Thanks for your support

Remember that you have caught this at a very early stage.

Prostate Cancer - even the aggressive ones, which you do not have - grow slowly.

You have time to ensure that you make the right decisions.

I had RT earlier this year and am pretty much over the minimal side effects I suffered - primarily a level of fatigue that was additional to that imposed by the HT.

The results have been good six months out, and I am now on 6-monthly reviews.

That's why I mentioned that people get different side effects, because a friend of mine had a few. You can only take your best guess as to the ones you are prepared to encounter.

I wish you very well.

 Crown green2e787e pretty much as I expected although I am slightly surprised that AS is the preferred option from MDT.  What it means as we have all said is that you have time to decide.  No option is without risk unfortunately but whatever you decide the decision will affect  you and your partner if you have one.  I was diagnosed too late for surgery, so went down the RT route (read my bio if you want by clicking on my name or avatar) and certainly would do that again.  ED and fatigue are my main issues but overall we are still having a pretty good life.  Hopefully someone will provide additional info about questions to ask etc.

Hi Crown Geen  I saw your post whilst browsing the macmillan community.so my reply is my first post which I hope might help you?

I had no symptoms but asked fir a blood test inc PSA at a GP vidit in March this year. I  was surprised to get a call a few days later my psa was 7.7 a second test 3 weeks afterwards 8.8.

So a visit to the hospital was booked for an MRI scsn. 

After the MRI scan i was told by a consultant that they saw a small shadow on the left side of my prostate so the next stage was a biopsy.

I knew then I had cancer which was a shock as I'm healthy fit and under 60.

We met with the cancer specialist to get the bad news that I did have cancer but looking positively it had been caught early and was small and contained within the prostate.

 My Gleason score was 3+4 =7 with only 5% being 4 everything else the same as your results.

We chaated through 8 options from AS to removal plus another which was a trial or study called PART which I could be put forward for and two appointments were arranged. One with a surgeon and the other with a radiotherapy specialist. 

Hi Keithedinburgh88a900 we seem to be very similar, I have also had a meeting with the surgeon and have another booked with an oncologist to talk through options including radiotherapy.  The surgeon was quite businesslike and gave facts and figures and a graphic explanation of the operation to remove the prostate and its possible side effects. Although his only advice was that its my choice I felt that reading between the lines he was more in favour of AS. After meeting the oncologist and discussing radiotherapy I'll try to decide. At this point Im thinking AS but am open to the idea that I will change if things go the wrong way quicker than expected, to be honest it feels like an impossible decision at this stage. Do you mind me asking if you have made a decision on treatment. Thanks

I had a lot more to type but I just finished my treatment yesterday so I’m a bit tired!