I was diagnosed with prostate cancer 2 years ago ( Gleason 8 ) & have just completed my 2 years of hormone therapy. My radiotherapy ( March ‘24 ) took the form of 5 sessions ( as part of the PACE trial ).
All seemed ok until a few weeks ago when I started to notice blood in my urine ( in addition to blood in poo ). I was hence referred for a cystoscopy & colonoscopy - these procedures seem to have aggravated things & I am suffering from increased frequency to urinate & a constant urge.
I have now been prescribed Solifenacin 5mg ( ( once daily ) to ease frequency & urge - been told to double the dosage after 2 weeks if no improvement & a switch to other medication if that doesn’t help. Can anyone share any similar experiences - the constant urge & occasional incontinence is driving me crazy!
Also I have telangiectasia around the base of my bladder. I believe that hyperbaric oxygen can be very beneficial but I am struggling to get any information on this. My consultant couldn’t help when I saw her a couple of days ago & has promised to get back to me. The NHS are highly unlikely to fund & hence I’m looking at paying for this. There is a facility in Hull ( 80 miles away ) which the NHS occasionally refer patients to - this is probably the ‘gold star’ facility since the depth to which their oxygen chambers go to covers all needs. There is a local facility in Nottingham - but the chambers have a maximum ‘depth’ of 2 atmospheres - my question is ‘is this deep enough’ to help with the telangiectasia? Any advice would be very gratefully received.
thank you x
Hello NoahsArk
I can't help with answers to your post (I even ran a search on here for Oxygen Chambers) so by me replying your post will go back to the top of page 1 and hopefully be seen by someone with some answers for you.
One thought I did have was you can pose your questions to a Macmillan Nurse - here's the link you need:
I hope you get some answers.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
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Hi , i have recently been diagnosed with prostate cancer and have a choice of either 5 doses of radiotherapy over a 2 week period or surgery to remove the prostate although i have read much information about surgery i dont seem to be able to find anyone who has recently had the radiotherapy could anyone help and answer my queries
thanks
Hello Lanza
I completed Radiotherapy a couple of years ago - 20 fractions, no lasting side effects. I had increased frequency to wee during the latter stages but that soon cleared up.
Radiotherapy is now very accurate and targeted.
You can read my journey by clicking on my user name or icon.
Feel free to ask any questions however trivial they are!!
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi Lanza only just seen your message. I am sure you have replied correctly and Steve (mstev2 ) will be along soon. Your question isn’t that straight forward
just wondering about the side affects from radiotherapy
Because we are all different and the PCa that the RT team are trying to zap will be in a different position in each patient. Advances in RT now mean that quite targeted treatment is given and collateral damage is minimised. In my own case I had 37 x 2Gy treatments to my prostate and surround and 6 years later 3 x 13Gy treatments to my sternum. The first treatment did cause a little damage but really not much to worry about.
All treatments come with risks, unfortunately. Hope this helps.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
I have little in the way of side effects still showing. I had little in the way of side effects at the time.
My urinary tract problems were all over the place (much interrupted sleep) have now settle down more or less completely.
There was some considerable fatigue at the time, and this is gradually waning over the months since It has not gone, BUT that may be as much to do with the hormone therapy which is continuing and the drugs I am taking for a back problem.
The back problem, previously existing, went into overtime during the treatment. By the time the treatment was finished it was in full flow. My additional problems MAY have been caused by the radiotherapy because it is my understanding that back pain can be caused by inflammation which, in its turn, can be made worse by radiotherapy.
Even these problems are reducing over time.
In short, if I hadn't had the back problem this would have been easy, almost enjoyable.
Under nearly all circumstances, you will have no problem with the treatment.
Any side effects are likely to recede over time, though not as fast as you would like.
Steve
Changed, but not diminished.
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