Coming off Abiraterone.

I can sympathise as I was put on Olapab and Abiteraterone as my PSA was doubling every 3 months so they put me on these
I'm currently on a break from both as they are planning to restart them at the end of May
They are going to reduce the Olaparib dose to see if it makes any difference to the fatigue.

The side effects are way worse than the fatigue from the three monthly injection. Sometimes I felt like an extra from "The Walking Dead"

Hopefully his PSA will stay level and he wont need to go back on it.

Hello Lorraine (BW) 

Well that sounds good to me. I think whatever the results are Mr BW will be a winner. His physical and mental health should see an improvement and I hope he finds he can stay off the Abiraterone permanently.

Do keep us posted - I am developing an unhealthy interest in 2nd generation Hormone Therapy. .

Kind regards - Brian.

I did think about you at the time, because you and BW are now on an interesting path of change. I now see your jump of PSA earlier this year as possibly a normal occurrence and hopefully that will settle and stay steady. Your next PSA must be due soon? How's it going for you.? 

*14th , Ive just seen it. Hope that goes well for you.

Hello Lorraine

Lab Rat Here!! Next PSA on Wednesday 14/5 and The Christie are pretty good with the results and any action so I should know Thursday.

In myself I feel great -I've been off HT since 6 December 2024 and in the first 3 months my PSA went from 0.29 to 1.63. I know my testosterone has rushed back .

I will keep you posted. 

Kind Regards - Brian.

Hi Slartibartfast 

I've just read your profile, what a journey! and walking dead is such a good description. it seems such a short break, will they extend it if your PSA stays down? My concerns for BW is that he will start to feel good and then have to restart and that will have a knock back affect mentally. His journey so far has been very up and down, but he has recently started to move on from that.

I’m supposed to have a phone appointment with the consultant before the end of the month to discuss the next step

to be honest I’m not looking forward to restarting the treatment due to the side effects but if the PSA goes up I suppose I’ll have no option

I’m making the most of feeling good at the moment

I will be keeping an eye on the thread Lorraine BW and let's hope that Mr BW's PSA remains stable. You have a plan.

It looks like a week for PSA tests next week as hubby also has his to see how the Relugolix which he has just been put on is affecting him. We seem to be having more tears but that is partly because Daisy his beloved mobility scooter died on Wednesday about a km from home -she is white but unfortunately not made for 2. I walked back home to get the car and ramps leaving a dejected hubby stranded but shouldn't have worried as in the meantime he was given several offers of help whilst I was missing. Off Daisy went yesterday on the back of a pickup (with more tears) to see if she can be repaired or whether it is curtains for her and Daisy 2 will appear. The smallest thing can bring on the tears but to him this was massive because it's his freedom and independence in the village. Compensation time today - we are going out for lunch in the next village so the car and Rosie his red walker seat will get him there. He has just decided that the car is to be called Lily as she is also white and was missing out on the naming front.

Hahahaha! you do make me laugh! I thought you was talking about a dog first. Perfect timing, you should be a comedian. Standing on the side of the road crying for the loss of a scooter, awww that pretty much sums up a mans journey on HT. BW has a similar attachment to his mower and everytime he gets (her) out of the shed he looks mournfully down and says, "she wont last long" and I'm not surprised she's like "Triggers broom" - years of fiddling with parts.

It will be a dark day when's she's gone. 

Do keep me posted here on whats happening with you because it's all very similar sounding and good to connect with  others on a similar theme/journey.

I had a Honda mower for about 20 years and was very attached to it (although never formally had it christened).  I faithfully got it serviced most years and then one day, ran over a big lump of metal.  The noise was unbelievable as it stopped dead.  I took it to the service guys and they pronounced that the crankshaft had fractured but not completely severed and it was still running.  They said it was safe to use and might do another cut or two but it wasn’t worth servicing again.  I used it most weeks for the next 15 years expecting it to keel over each outing, but it went on faithfully without ever getting a service again.  When we sold our house to move to a flat, I left the mower for the new people with a health warning that it probably wouldn’t last much longer.  Two years later, they are still using it.

It sounds slightly like my own cancer journey!  David