Hello, hope everyone is OK. My husband has Prostate cancer with metastatic growth in bones and spine. He was tuin a lot of pain prior to diagnosis (GP thought it was sciatica) but this resolved with steroids. He also had Degoralex injection and one session of radiotherapy.
We now discovered that the pain can re-emerge when the effects of the steroids stop (he is currently slowly tapering the dose down). Has anyone experienced this please? It’s all so stressful, Mike is due his second dose of Degoralex on Wednesday and we assumed it was prescribed by his GP….but it hasn’t been done. Sorry for the pessimistic tone of this post. With thanks
I can't speak to the pain directly, because I have not yet reached a stage like that.
With regard to the injection, the GP should have received a letter from the hospital confirming both diagnosis and treatment. The GP would then know what to prescribe. That was what happened in my case.
However, when it comes to the injection, I found that I had to request that (I now do it about 14 days in advance of need), and book an appointment for the injection to take place. Once again, this is my case, and the same may not apply in your area.
It is best to have the injections as close to the target date as possible, although given the bank holiday you might now have problems arranging it for Wednesday. A few days is not important, but getting it this week would be good if you can do it.
In the even I was in your position, I would be planning to contact my GP on Tuesday and simply ask what the practice is, and how they can help. I would make sure that both I, and they, understood what I had to do in the future, because they don't always tell you.
I think that I would also contact the Oncology Department - you should have been given a contact point - and ask them the same questions. You can also ask for help with the pain issue.
Quite a number of people on this forum have had radiation treatment on bones to help with pain, which sounds like what your husband has had. If you call the hospital as mentioned above, they will be able to confirm what is likely to happen in your husband's case.
I am sure that others will be along to give a better answer.
Looking at what I can find out, it does seem that this is your first contact here. No one wants to join this club, but when they do, they find that it is very worthwhile. There are a lot of lovely people here, with a great amount of knowledge and experience, although you do need to remember that none of us are medically qualified.
Steve
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