Thought I would update since it’s awhile since I’ve posted.
Im into my second year on A/S having had a Gleason score of 3+3 , 3 monthly psa and yearly mri
Last psa was 8.8 which is slightly down on previous one, psa has been in the 6-10 range with only one being ten, I was 8.8 exactly a year ago, interestingly every time psa has increased slightly the next one has always been lower
I had a mri scan over 3 weeks ago so hoping to hear results shortly, I’m not to much of a worrier but as everyone knows it’s always a worring time whilst awaiting results
Best wishes to everyone who’s going through tough times
Thanks for the update Fleet and glad that your PSA is showing that you are stable. When you get your MRI results just check that there has been no change in the lesion size. Let us know how you get on.
Impressive stats. The term “balls of steel” springs to mind! Seriously, though, you have an excellent approach to the information trend - a valuable commodity - and with Gleason 3-3, it’s giving you lots of time to concentrate on your quality of life. Long may it continue! It should be a major comfort to those on here who are presenting with similar statistics. AW
Fleet - you’re quite right to do so. Some men hear the word “cancer” and go into full panic mode (even to the extent of “I want it gone” and dash to prostatectomy, without fully considering side effects). They don’t hear “Gleason 3-3”, or “3-4” - both of which , if there are no aggressive traits on the histology, are perfectly manageable. Well done and keep the information flowing. Every little helps. AW
I would hasten to add, though, that the “balls of steel” would apply to any man progressing from 3-3 to 3-4. This is because, by its histology under the microscope, Gleason 3-4 cell structure is a looser format than the more tightly packed Gleason 3-3. Of course, a Gleason 3-4 with only 10% grade 4 is a different proposition to one with 40% grade 4.
I think of Gleason 3-3 as a wart-like slow growing growth in the gland. Personally, if I had any Gleason 4, I would be looking towards a focal therapy like HIFU or brachytherapy as a mono therapy (no HT with either). Once you get a higher percentage of grade 4, particularly with aggressive traits such as cribriform, perineural invasion or AIP, then I would be looking for a more aggressive treatment such as brachytherapy boost with 6-18 months HT depending on likelihood of any escape. I would stress that I am not medically trained and we are all different with varying prognoses. I am, however, well researched, so these pointers should help readers frame some questions to their consultants for their particular cases. AW
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