Post-RALP incontinence

I am not speaking for myself, but as a result of many discussions with a good friend who was in the same position as you last June.

His position improved gradually over the months since, to the point where he now considers himself fully recovered. It seemed to me that it was a slower journey than he had been prepared for, but effective over time.

I hope that yours is at least as good.

Hi. My story is very similar. I am 6 weeks post op and 4 weeks post catheter removal. The first two weeks for me surpassed all expectations, dry at night and only 2/3 pads during the day. Changing the pad not because it was heavily soiled but because I was worried I was going to “smell”. Then for what ever reason I appear to have gone back in style. I went to the football yesterday and changed my pad x 3:in 90 minutes, and they needed changing. I believe my issues are around my exploration of managing loss of libido and impotence is the cause. Being a very sexual person before the op I was distressed at the thought of impotence. I was right to be concerned, I’m as dead as a dodo down there. Advised by surgeon to begin stimulating my penis as soon as I felt able to to. Week four, no sex for 4 whole weeks, unheard of so time to begin penis rehab???? I have not been given any medication for ED  at the moment so began gently stimulation, no effect what so ever. I then tried the vibrator to the glans and frenulum. Wow, and I mean wow. No erection, no ejaculation but the most amazing climax. It took me totally by surprise. Only problem is that all the good work done with pelvic floor exercises before and after has seemingly disappeared.

Did I start too soon or is my increased incontinence a coincidence. Without a prostate the climax is I believe is based on pelvic floor contractions so could this have the cause of my increased continence issue.

Grateful for any advice.

Al985

Thanks Steve.  Appreciated. Looks like I'm likely in for a long haul...

This may be a problem, as I've only had the induction course of BCG treatment, If I'm unable to hold the BCG it renders the maintenance courses somewhat problematic. There's a 30%--70%  chance of the bladder cancer recurring, so I really don't want to miss out on the BCG. If it does return, the the only option is a cystectomy.