Prostate cancer

Hi, sorry to hear that. Can you advise us the psa score and the mri/biopsy detail, as I had it 1 month ago.  Have a look at my profile please..  

This is a good post. 

You have already made my life better by the way you have put it. 

I was diagnosed with PCa a year ago, and an going through the radiotherapy and hormone therapy route.

The fly in the ointment is that I now have a herniated disc which is causing significant pain , mobility problems, and swearing.

So feeling a bit down the words "There is life after diagnosis" is just what I needed to hear. 

Thank you. 

You have already reached your target of 1.

Keep on keeping on.

'There's life after diagnosis' is a very good mantra and I am sure you will agree that it gets easier once a decision has been made on the treatment pathway. Besides Steve mstev2 you will be helping the many lurkers who look for information but don't want to participate so can I suggest you update your profile page with a bit of basic information about your particular diagnosis and how you get on with the Brachytherapy.

I hope your experience is similar to that of Alpine Wanderer and that you have a speedy recovery.

Alwayshope of course I'll keep the page updated. Yes I was gleason score 3+4,psa 5.2 which has risen to 10.2 in last 12 months hence reason why they're talking about taking me off AS and doing something. I thought long and hard about the options but at my age didn't like the idea of surgery due to all the possible and probable side effects and after talking to Alpinewarrior I made my decision, well he confirmed what I was already thinking. Cancelled my surgery Friday just gone and now waiting to speak to the specialist at clatterbridge with regards to Brachtherapy so will let you know what the outcome was, hopefully I'll be offered it and I'll start the fight to her rid of this bastard thing. Anyone needs to offload then I'm here as talking to people you're close to can be hard but medicine and treatment is getting better each year so never give up

Cheers Steve, any little I can do to help, we just need to get fellas talking about it which isn't easy so to be able to do it via this forum is a start. Alpine warrior reached out to me via here anreally helped me so I'm just trying to pass it on. Herniated disc ain't great but you sound like a fighter so let's fight together brother

Hi Bluecloud1, yeh gleason of 3+4 and psa of 5.2...mri said localised to one quarter of my prostate and mri 12 months later showed it hadn't grown at all but my psa had nearly doubled so time for action. Just waiting now to see the specialist as I felt surgeon was pushing me for surgery but seeing all the possible side effects I decided I didn't want it as I'm still relatively young. I'll look at your profile but thanks for the reply 

Hi again, it’s really hard making the decision, I went to clattterbridge to meet the mdt team which turned out to be a surgeon and a radiologist offering external beam or SABR. I had the option of AS but in the end I decided I wouldn’t be good with that as I do tend to worry over things. I then sought a 2nd private opinion and this lead me to brachytherapy which I had just over 4 weeks ago, upto now all is well as I didn’t have any other treatment, ie HRT etc. I do tend to go to the toilet more often but then again I do drink a lot and stay fit, and sometimes it takes longer or doesn’t flow at all at first then springs into life and then eases off, it’s almost comical because I end up putting both hands on the wall and just let it dangle until it decided to do something, the whole thing takes about 2 or 3 mins, however, I am now sleeping right through.. libido and everything seems ok…. It is difficult though to make the decision, but you are fortunate as you have more options than most.   

Bluecloud1 said:

it’s almost comical because I end up putting both hands on the wall and just let it dangle until it decided to do something, the whole thing takes about 2 or 3 mins,

Snap.

Evening everyone, I had my consultation yesterday and tbh it was it more confusing as ever. I'm lucky in a way as I have options but even when you have options you still want direction considering t surgeon wanted me booked in and on the table within the month.... Ffs the radiation specialist said I could probably prolong my As for now so think the surgeon was well premature. Anyway, awaiting call from Manchester re the Brachtherapy as clatterbridge only do the sbrt etc but I'm leaning towards the sbrt as my cancer is localised and gleason is low. Spread the word and get your friends, brhers and colleagues psa tested as early detection can help us save lives, I had no signs bar the psa test so come on and let's help each other fight this fucker, we can all help one another

So far my example and urging has uncovered 2 more cases that I am aware of amongst my own contacts.

My wife has been going round blackmailing her friends and contacts and there's another 2 there, including my brother-in-law..

It is likely that all of them will ultimately defeat this illness .

All of which leads me to wonder whether 1 in 8 men getting this illness is a statistic that will stand the test of time.

Also, and this is totally unscientific and the wondering of a mind that has no real background in this stuff, I wonder whether the measures being taken to defeat prostate cancer might lead the way in defeating other cancers.

For example, immunotherapy has not always been successful in defeating hard tumours. Prostate cancer grows slowly enough to offer more than one shot.

Idle thoughts, early in the morning.