My husband had his prostatectomy in June 2023 and since then his follow up appointments have been cancelled twice. At his last appointment in June 2024 he was told his next appointment would be in 4 months and he received the appointment for October. He has taken control of organising his own PSA tests roughly every 4 months for our peace of mind, which is as well because the October appointment was cancelled and no further appointment has been sent. He is very fortunate that all his results have been undetectable and he is content to continue taking responsibility for arranging his own tests, but he needs guidance on the frequency and also for how long he needs to continue taking daily tadalafil.
Past experience has shown that it's no use ringing urology as they don't respond to the message he has to leave and appointments office can't answer questions.
Emails have been sent to the consultants secretary named on one letter, the Macmillan nurse who was there when he got his diagnosis. An email was also sent to the ED nurse who sorted out an appointment for him when the same thing happened last year. None of these emails have been responded to, so the next step was to send an email to the hospital complaints department, which has also not elicited a response.
I can only hope that those who are not as fortunate as him have not been cut adrift.
I know that every case is different, but would appreciate any input regarding the frequency of PSA testing and the length of time tadalafil should be taken daily. He has been prescribed with a pump and told to take 3 of the daily tablets the same day any action is anticipated, but not to take one the day before, so basically he needs to be prepared 24hrs in advance for an event that may or may not happen.
