Hi everyone, posting as we are just a month into this journey and I could do with some insight.
My husband has metastatic prostate cancer and we know it’s spread to his pelvis/lymph nodes. His PSA was 65 in Dec, 80 in Jan and since starting the hormone suppressant Orgovyx it’s gone down to 6! Our registrar just called to tell us, he only had the blood test today!
So I guess I’m asking what does this mean? Obvs wonderful news but any other info? We don’t have his full biopsy results just yet so unsure of Gleason scale.
thanks so much
Dani
Hello Dani. As Orgovyx is one of the newer hormone therapies to have been approved is useful to get information on how quickly the PSA goes down and to what level so please keep the figures coming I. Looking at the manufacturers information your results are good . Here is a bit of information.
Hello Danni (MrsG14)
So the Prostate Cancer uses Testosterone as it's food - The Hormone Therapy in your case Orgovyx reduces your husband's testosterone and thus the cancer can't thrive, grow and go "walkabout". Once the cancer has in effect been "put to sleep" with lack of food then further treatments will be used (Radiotherapy / Chemotherapy) to kill off the cancer cells for good.
The lower the PSA the happier your husband and his team will be.
As he's started HT (Hormone Therapy) he needs to ask his team or GP for a prescription for Calcium and Vitamin D Tablets as HT can thin your bone structure - oh and anyone with a cancer diagnosis is entitled to free prescriptions.
I hope this helps - feel free to ask any questions.
Best wishes - Brian.
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Hi Dani (MrsG14 ), welcome to our club. Without the biopsy we can’t give you accurate advice but maybe helpful to tell you my history. I was diagnosed with PSA 74 in March 2017 spread to lymphs. Since then treatments have advanced significantly.
This is a horrible time waiting for results but once you know what you are dealing with (good or bad), I think most of us have found it easier. My suggestion to you would be to get as fit as possible and make sure you have the NHS App with FULL access (your GP surgery should give this). Not all health authorities are linked to the App but you might be lucky.
Once you have the results we can help further. Please ask any questions you have. David
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