Finally got results but not the ones we hoped for

Hello Clare (Clarebryan62) 

Well, a Gleason Score of 7 isn't aggressive - did they give you Bryan's TNM staging?

The theory behind HT/RT is that the Hormone Therapy will deprive Bryan of his testosterone, this is the food for the cancer. Give that 3/6 months to work and then "zap" the prostate with Radiotherapy and this should kill the cancer cells dead. Stay on HT a little longer to mop up anything left.

Here's two links for you:

Hormone Therapy for Prostate Cancer

Radiotherapy for Prostate Cancer

There are side effects and he needs to keep as fit as possible. As HT can weaken your bone structure a prescription for Calcium and vitamin D tablets is a must.

To me that sounds very much like a "Curative Pathway".

Any questions, feel free to ask - we are with you all the way.

Best wishes - Brian.

Hi Brian unfortunately not just a gelson score and 10 out of 12 biopsy’s taken were cancerous and that the tumour had started to grow outside the prostate and to start taking the hormones straight away and they will be in touch to start radiation therapy x

Hello Clare (Clarebryan62) 

i am aware of what you said but the Hormone Therapy will start to work NOW and put the cancer to sleep. If you have the TNM staging that would give me a better idea - even though it's growing outside the prostate (your MRI said contained) it's very much treatable. Do you have the bone scan results?

Best wishes - Brian.

Brian I take vitamin d tablets can you suggest what to take calcium wise ,and good luck with you treatment Bryan 

Hi Brian they didn’t give us a tnm stage I understand the confusion as I thought it was contained to but they told us it’s started to grow out of the prostate they said clatterbridge will tell us more when we speak to the oncologist x

Hello Mace 

As I have been on HT for 3 years the GP prescribed Calcium and Vitamin D Tablets.

Mine are "Evacol D3 1500mg chewable tablets".

Best wishes - Brian.

Thank you my Gleason was 7 and confined I'm on tablets for a month and had my first hormone injection will start radiotherapy in 4 to 6 months for now having injections monthly to see how I get on 

Hello Clare Clarebryan62 

This is the NHS not at it's best. From the Prostate Biopsy amongst other things they get the Gleason Score and the TNM staging - I would suggest you contact the team you had the meeting with today for this information and a copy of the meeting minutes.

How they can tell you it's started to grow outside the prostate is a mystery as it wasn't on your MRI.

I know the diagnosis is a shock - BUT the cancer has now been stopped in it's tracks and the journey has well and truly started.

Best wishes - Brian.

Hi Clare 

Staging is the most important point here, Gleeson not too bad and  he has started on HT to hopefully halt it in its tracks 

If T3 then as you have said just outside the gland and still potentially curable 

If T4 then it's spread elsewhere and does make it quite a bit more difficult.

So that's your question to them T3 or T4, they should be able to tell u that over the phone.

All the best

Steve

We got this book with all information in and this is all it says xx