The journey continues learned

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I learned on Thursday that my cancer has indeed spread....the little buggers have been sighted.My oncologist and me are very upbeat...his parting sentiment was...you will be seeing me for years. He Thinkingplained that they were nodules at,the moment, confined in the pelvic area and lymph node only which apparently Thinking is the best group to respond to LHRH Analogues. There is no indication of bone mets or presence in major organs.Anybody Thinking out there have experience of side effects?I get very tired on bicalutomide anyway....is osteoporosis a common side effect?

  • Hello  

    I am so sorry to read that. I had a "suspect area" on my pelvis and my oncologist had them "zapped" at my Radiotherapy treatment. My PSA is still a low(ish) 0.29 so lets hope it worked.

    Your oncologist sounds happy with your treatment so stick with us - you are doing great.

    Best wishes - Brian.

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  • Good morning  ,

    I am not in the same position as you with regard to recurrence, but my initial treatment includes radiotherapy and Zoladex which is a LHRH Analogue. I've been on that for 6 months.

    My initial side effects have been:

    • Low libido - fallen off a cliff.
    • Erectile Dysfunction - who cares, given the above (my wife doesn't care either, she has her own medical problems).
    • Hot sweats. Bad ones are quite infrequent, but what I think of as a "hot rush" are regular. I take them as signs that the therapy is active and smile when I get one. I'm a bit weird.
    • Beyond that, some fatigue, occasional bouts of brain fog which appear linked to the fatigue or stress, both very mild and limited.

    I am taking calcium and vitamin D3 tablets to counter the bone effects. I was going to the gym three times a week prior to radiotherapy, but given the chunk travelling has taken out of my day have not been going. The other preventative was walking, but something called piriformis syndrome had thrown that out in the short term. That is quite literally a pain in the bum.

    Looking at everything your oncologist has said, you are in a good place. With the advancements in therapies continuing to gather pace, it seems to me that most f us are going to be in a better place over time.

  •   , I have been on Zoladex for over 7 years and like  had RT at the start.  To be honest I can’t remember what it was like before having HT but as I am approaching 76, more issues seem to be age related rather that HT I think.  I did have 4 months recently on Enzalutamide which nearly wiped me out but others on here have tolerated it well.  We are all different.  Good luck, David