Hi folks,
I've been on degalarix for nearly two years. It started to fail (increasing levels of PSA) and Enzalutamide was added was added about 6 months ago. The PSA dropped and started to rise again. The oncologist has arranged for me to start Radium 223 in January and told me that I should stay on Degarelix and Enzalutamide. When I went to collect the next batch of Enzalutamide tablets, the pharmacy said that they had no prescription and it was not normal to have both the Radium 223 and Enzalutamide together. From what I have read there is an advantage to having both together. The situation is not helped by the hospital (YGC) having lost my notes. What have others found? Does anybody have any advice? Can I demand that the Enzalutamide continue (I know that it is expensive)?
Thank you
Chris (Skoda)
PS My prescribed batch runs out on Christmas Day
Hello Skoda
Thank you for that piece of information. The issue is there is no National Standard and every health authority has their own guidelines. Each Nation, England, Wales Scotland and Northern Ireland have different guidelines!!
There are guidelines on the NICE website (National Institute for Health and Care Excellence https://www.nice.org.uk/guidance
Best wishes - Brian.
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