I saw today the radiologist, was an interesting talk ,no conclusions yet ,he's a young man ,he start talking about the normal procedure to zap only the prostate to increase my life expectancy, I told him immediately that was not acceptable, I want all pelvic area zapped and possibly to boost on lymph nodes, he had not read my file yet ,I told him that for me the chance of cure is always op front ,he told he had to check the amount of lymph nodes and where were those lymph nodes ,he didn't want to answer based only in what I was telling him ,he said 5 lymph nodes on pelvic region is still doable, now he is going to read my fille and talk to his colleagues and telephone me next Friday with the decision, he talk something about 28 for radiation numbers but my mind was so focused about tell him what I wanted that the 28 something about radiating escape from me ,my wife says I talk to much when I'm with doctors, but I want them to understand that I'm not just another patient, it's my life we are dealing and I want the best chances I can get and for me I still see the possibility of cure and that's my goal ,told him , you can tell me it will increase your life expectancy for 20 years that I will still fight for a cure ,if it is still possible that's my goal ,he was not closed to the idea of zapped all and 5 is still viable, that's good ,if the answer next Friday is no I'm going somewhere else.
Hi Murcao , I find it hard to understand that he hadn’t read your file but was prepared to send you on a treatment path. Well done for being aware of your options. Hopefully they will now take you seriously (as they should have done at the start). Keep up your positivity. David
It was a start appointment, he says he wants to begin the treatment in February, 3 months after I started the ht treatment, to see if the ht have shrunk things a bit so it can have less field to radiate ,I got my first ht shot one and a half week ago .
Thanks for the update Murcao . It sounds as if you are one step forward by getting your point of view across, plus you know that five lymph nodes are treatable with the proviso of where they are. If they identify and say that a problem could be a closeness to the bowels then ask whether the Spaceoar (Hydrogel) might be of benefit. Good luck for Friday.
Thank you ,I was very explicit about what I wanted ,but because he haven't read the filles yet he won't give a definitive answer, I told him that I was sure they were 5 lymph nodes and they were all in the pelvis, than he agreed that five he can still zapped them but still had to read the process and talk to the team ,normally we only zapped the prostate and that will increase your live expectancy ,I told him ,thanks to your informations ,that everyone else got all their pelvis radiated and also positive lymph nodes boosted ,even if you tell me I will not have recurrence for the next 20 years I will still looking for the cure ,I know it may not happen, but it's more easy for me ,I think, that that possibility exists,my problem is that I'm a very negative person ,as my wife says ,even with good news your head is always looking for the eventual dark spots ,I want to get out of this depression but is being difficult, you can tell me dat 100% sure nothing wrong will happen in the next 10 years and my head only thinks on the year eleven.
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